I have been battling Multiple Myeloma for seven years. I have had two SCT. I have been on just about every medication and am now on Tclistamab which is different than a T-cell transplant. I have been on it for a year and I have been in remission since I started taking it.

I'd like to heat from you. If you've received financial support from a non-profit or pharmaceutical company, please let me know. And how-much! This matrix is helpful to us in-house and helps us to determine our level of support to you and keeps this program going.

What support groups are available for the caregivers?? Thank you, -Lindsay

Hi Everyone, Have any of you been asked to complete a PRO survey during your treatment? As you know, PRO stands for Patient-Reported-Outcomes. These surveys are intended to help the research and healthcare communities understand the impact of medical treatments on patients in terms of side effects and disease symptoms. Personally, I have completed such surveys and have found them to be somewhat frustrating, primarily because they tend to be too black or white and lose the richness of nuance and personal experience that are better expressed in my own words. If someone has experience of PROs, whether positive or negative, I would welcome the sharing of your experience. Did the survey capture the reality of your myeloma experience? Were you satisfied that your answers were providing helpful information about your experience to the research or healthcare team? Did you invest time and effort in your responses or did you simply respond to satisfy the team's request? Finally, do you feel that the survey captured the range, intensity, and duration of the side effects you experienced? Thank you in advance for sharing. And good luck on your myeloma journey

Is anyone who is NOT diabetic taking any GLP-1 receptor agonists (GLP-1s) anti-obesity medications like Dulaglutide (Trulicity), Exenatide (Byetta, Bydureon), Liraglutide (Victoza, Saxenda), Lixisenatide (Adlyxin), Semaglutide (Ozempic, Wegovy, Rybelsus), and Tirzepatide (Mounjaro, Zepbound) to reduce obesity and thus, reduce risk of multiple myeloma progession? Or, do you know of any Trials looking at GLP-1's and MGUS, SMM or MM?

A few spots are still open for the HealthTree Challenge: Hike & Wellness — a weekend that brings together movement, wellness, and support for blood cancer patients. Here’s what it’s about: Raise $1,500 for research, education, and patient support. Train with an optional 12-week plan to get ready for the hike. Join a team of people who care and want to make a difference. 📍 Where: Berkshires, MA 📅 When: October 23–25, 2025 Will you take on the challenge? Let’s do this! https://give.healthtree.org/event/healthtree-challenge-hike-and-wellness/e663485?c_src=socialmedia

Hi Everyone, Have any of you been asked to complete a PRO survey during your treatment? PRO stands for Patient-Reported-Outcomes. These surveys are intended to help the research and healthcare communities understand the impact of medical treatments on patients in terms of side effects and disease symptoms. Personally, I have completed such surveys and have found them to be somewhat frustrating, primarily because they tend to be too black or white and lose the richness of nuance and personal experience that are better expressed in our own words. If any of you has experience of PROs, whether positive or negative, I would welcome your sharing of your experience. Did the survey capture the reality of your myeloma experience? Were you satisfied that your answers were providing helpful information about your experience to the research or healthcare team? Did you invest time and effort in your responses or did you simply respond to satisfy the team's request? Finally, do you feel that the survey captured the range, intensity, and duration of the side effects you experienced? Thank in advance for sharing. And good luck on your myeloma journey.

I am new to this post. Diagnosed with mgus in October of 2023. Currently have IGg lambda type with mspike of 1.62 and lambda lcs of 570.Trisomy on fish and 7% plasma cells on bmb 18 mos ago. Kappa slightly elevated at 33. My oncologist has me on 6 mos. checks but says my numbers are going in the wrong direction. My bloodwork is all normal. Scheduled for abdominal mri on Monday for lesion on my right kidney (hopefully a cyst). Is anyone out there similar or been there done that? Also has anyone pursued amyloidosis possibility wiith their oncologist r/t high light chains. would love to hear from you. Thanks to Healthtree for this forum. I know I have a lot to learn.

Some possible challenges that may affect you. Be aware! There is an challege coming before the Supreme Court. The first is that The new Administration is challenging the need to have preventative care which pays for cancer screens paid for by anyone carrying an insurance plan. We will know Monday possibly the impact of this challenge.

Save the date for the Chicago Myeloma Roundtable! 📍Chicago Marriot Southwest at Burr Ridge-Burr Ridge, Illinois 📅May 17, 2025 / ⏰ 08:00AM - 02:30PM CDT Join us for the Chicago Myeloma Roundtable at the Chicago Marriott Southwest at Burr Ridge, May 17th from 8:00 am-2:30 pm to hear from top myeloma researchers. The day includes informative and engaging presentations about the latest in myeloma as well as breakout sessions for both newly diagnosed and relapsed/refractory patients. The event will feature two sessions that include extensive Q&A. 🔗 Learn more here: https://healthtree.org/myeloma/community/events/chicago-myeloma-roundtable-2025?utm_source=social_media&utm_medium=meta&utm_campaign=RTChicago2025&utm_content=general #Myeloma #ChicagoMyelomaRoundtable #MultipleMyeloma #CancerResearch #PatientEducation