I’m interested in information about skin changes that Ive been having. I have lambda light change myeloma that Ive described on another thread. Briefly, I was put ona regime that first started with REVlimid-Dara-dex. Monthly Zometa. Rash caused my oncologist to lower Rev dose. This didn’t help. Put on Pomalyst but shortly went out of remission. Am now on DkD; IVIG and Zometa monthly. During ALL of this (now about 27 weeks since first treatment) I continued to have a rash: small pimples (2-3 mm) with a zone of intense itching that is not visible on the skin surface, that can extend 2-3+ inches. When multiple pimples appear within proximity to others the “zones” overlap and thus the itching is very extensive yet unnoticeable except the dreaded and also itchy pimples. A “Vey” diagram would show the effects. Dermatologist did biopsy: results “severe hypersensitivity to medication.”Ive been treating it with Triamcinolone which offers brief relief. I have always had minor chronic itching since first treatment but a week ago it flared, again—as it does off and on regardless of the treatments, as described above. I see no correlation with any medication. About the time of the this rash flare I began to have “bruising” (what I’ve heard referred to as “liver spots” on older folks). These too began with my first thread but in minor ways. This week however looks a bit like I was beat up. Pictures of both attached. Any thoughts? Thanks! Bob

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I have SMM , diagnosed Aug 2024 Last PET and blood work was good No tumors / lesions / blood stable IGA still very high IGG low month ago But last week or so fatigue has been extreme , bone pain everywhere and waking up with bruises everywhere No falls or reasons for the bruises and vision been blurry and had migraines a couple days . But overall the fatigue is terrible . Should I be concerned of progression ? Anyone else start with Smoldering that progressed to MM that can tell me signs to be aware of ? Thank you

Hello everyone and thank you for having me, in this group my husband, was diagnosed with multiple myeloma, but he’s doing really well now he has had a stem cell transplant and Car-T transplant and is now in remission. I guess we can say but he’s doing great and I thank God every day for his journey.

I’m in a similar situation with Igg numbers particularly low after CAR-T on 12/31/2024. I’ve been taking a monthly IVIG treatment for 6 months now and been illness-free until last week when I contracted Shingles (yes, it sucks and recommend avoiding it if you can). I generally avoid people/crowds out of habit but have been slipping on the mask usage at my typical haunts. Michael

Behind every patient’s fight, there’s a caregiver whose love and strength light the way. 💛 This November, we want to honor you through our “Heart Behind the Care” campaign. If you’re ready to share your story, to inspire, comfort, and bring hope to others, please email ximena@healthtree.org Your story will be shared on HealthTree to celebrate and uplift the caregiver community. Your voice matters. Your story matters. Let’s celebrate caregivers together. TOGETHER WE CARE. TOGETHER WE CURE

I had a kyphoplasty procedure about 2 weeks ago to “fix” a compression fracture in my L4 vertebra. The intense pain from the fracture was relieved immediately after the procedure. What caught me unaware was the excruciating pain throughout my entire rib cage which started the next day and continues 2 weeks later. I still need to take OxyContin extended release pills to manage the pain because acetaminophen doesn’t touch it. Has anyone else had this outcome after a kyphoplasty and how long does it take to go away? Thanks for any helpful suggestions in advance!

Recently diagnosed in August 2025 started treatment 10/14/2025. Pretty intense at first. Pills and injections twice a week. And one week off . Who has had a great outcome with this treatment. Using dexamethasone and valcade injections

Behind every patient’s fight, there’s a caregiver whose love and strength light the way. 💛 This November, we want to honor you through our “Heart Behind the Care” campaign. If you’re ready to share your story, to inspire, comfort, and bring hope to others, please email ximena@healthtree.org Your story will be shared on HealthTree to celebrate and uplift the caregiver community. Your voice matters. Your story matters. Let’s celebrate caregivers together. TOGETHER WE CARE. TOGETHER WE CURE

Behind every patient’s fight, there’s a caregiver whose love and strength light the way. 💛 This November, we want to honor you through our “Heart Behind the Care” campaign. If you’re ready to share your story, to inspire, comfort, and bring hope to others, please email ximena@healthtree.org Your story will be shared on HealthTree to celebrate and uplift the caregiver community. Your voice matters. Your story matters. Let’s celebrate caregivers together. TOGETHER WE CARE. TOGETHER WE CURE

Please note the following from the Patient Advocate Foundation: CPR Funds Now Open: Multiple Myeloma, Myelodysplastic Syndromes The specific eligibility criteria for each fund can be found at https://copays.org/funds/. For personal assistance with the application process please contact us toll-free at 866-512-3861 or visit our application portals at https://portal.copays.org/#/login, with access available for patients, providers, and pharmacies.

Please note the following from the Patient Advocate Foundation: CPR Funds Now Open: Multiple Myeloma, Myelodysplastic Syndromes The specific eligibility criteria for each fund can be found at https://copays.org/funds/. For personal assistance with the application process please contact us toll-free at 866-512-3861 or visit our application portals at https://portal.copays.org/#/login, with access available for patients, providers, and pharmacies.

My husband had a analogous stem cell transplant earlier this year Jan / February for kappa light chain myeloma. He recovered well and is apparently in remission. His kappa cells have recently started rising again in blood test and I'm wondering if its a sign of early relapse. He is on maintenance dose of 10 mg lenalidomide which last week was increased to 15 mg. Im feeling anxious about this. I am a nurse myself so maybe just overthinking things . I emailed the nurse coordinator today and asked her to check with the Dr but he hasn't replied to her. All other bloods are fine at thus stage. Protein a little low. Urea elevated slightly. I appreciate and thoughts on this. Should I be doing more .

I have to share something with our group here. Last Monday 10/13 about 4:00 am I was awakened by a very loud crash sound. I called out my husband's name thinking he bumped into something but was not answering just to mess with me. Which he does a lot. After he didn’t answer me after my calling out I got up and went into the bathroom. What I saw scared me to death. Of course, at first look I thought I had lost him. I was screaming his name thru the tears but he would respond. He had fell off the toilet face down in the corner with his shorts down around his ankles. I tried to pull him out of the corner. He was making this loud snoring sound so at least I knew he was breathing. I pulled on his shoulder to see his face and his eyes were half rolled back and his tongue was half hanging out. I just knew he had a stroke. So I ran back in our room to get the phone to call 911. Then after them I called my son who lives about a mile and a half away. He got here in minutes. He was able to turn my husband over and get his shorts pulled up before the EMT’s got here. After my son helped him and put pillows around his head and bandaged up his nose where there was a gash that kept bleeding, he began to form his words. He was TOTALLY OUT for nearly 15 mins. The EMT’s came in and got him off the floor and back in bed. They checked all his vitals and they were normal. He was answering to her commands so she said he didn’t have a stroke or concussion. They said they would take him if he wanted to go. Well, I knew my husbands answer to that. I was hysterical in the whole situation. I was crying and having trouble breathing myself. I hope that never happens again. The EMT’s said that chemo patients tend to have sudden drops in their BP. They felt that was what it was. Any thoughts? Comments?

I am 4 years out from my stem cell transplant and my IGG numbers have remained stubbornly around the 150-160 mark. This is way below the bottom end of normal. My oncologists (I am now on my third in four years) as well as my MM specialists have all told me that I do not need to get IVIG unless I am getting a lot of infections. I am very careful when I go out (which is not often), always wear a mask around other people and do not eat out or go to places with crowds. I haven't had any infections so far but I'm pretty sure that is mostly because of how careful I am. What has been others experience with getting IVIG? Has anyone gotten it as a prophylactic?

I'm looking for a new hospital that puts emphasis on bone health. Currently, I'm at HUP with fabulous docs but when it comes to my bone health it's a miss. Even though I've been in remission since 9/23, I had another compression fracture in Feb and now somethings brewing agn. I pushed for new testing and pet scan showed tons of new lesions throughout. I'm awaiting a bone marrow biopsy, as well. If I am in "remission" and my dr kept saying everything was great, why is this happening and why isn't more emphasis put on bone health? I've also watched my m-spike increasing since May, but still in safe zone at .5 Background: In 2020, I started w/ xgeva which caused osteonecrosis. I now receive zomeda, but only twice a yr.