I turned 40 in 2016. That same year I was diagnosed with a myeloproliferative neoplasm (MPN) with a Jak2 mutation. In the years that followed I have been diagnosed with Multiple Sclerosis and Smoldering Multiple Myeloma. I'm wondering if anyone else has experience, and some advice, for balancing their treatments and care for a variety of chronic illnesses.

I finally received the last report. All results were pointing to mrd negative until the last one. The one that digs the deepest. I am just above the cut off. So still in a deep remission but not Mrd negative. I was given a few options. 1 - continue with 10 mg lenalidomide 21 days on and 7 off. 2 - drop to 5 mg instead of 10 to help lower some side effects and secondary cancer risks. 3 - add darz shots once a month to try to push me to the negative. I hear that sometimes it will get there on its own with the maintenance med. I am three years post stem cell transplant. Kappa light chain 11:14 trisomy 9. I am taking some time to digest this. Looking for any advice. Thanks!

So I had to stop taking my medication for a month so I could get my T cells harvested for car t. I’m a bit worried because I just had bloodwork done after the month and my kappa is normal but my lambda is low and my ratio is high. (4.9) I know that the ratio is the most important. I started my venetoclax back up today and will take the pomolyst tonight. Should I be worried

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Good morning MM Warriors and Heroes (caregivers). I've been on maintenance of Dara once a month and Pomalyst 1mg 28/28 since Halloween and have been bubbling along at a low simmer. All my numbers move up or down slightly every month but all within or very near normal range. NO CRAB or other issues or side effects. Until this month's light chains result. My lambda light chains have been hovering around 9mg/l +/- 2mg/l since early last year. This week's result more than doubled from 11.56 mg/l last month to 24.3 mg/l this month. Kappas have been behaving themselves in the 6mg/l range - all within "normal" ranges. We're still waiting on the SPEP result (it's been a steady 0.9 since September) to see if anything changed drastically there. I see the local tomorrow for my regular visit and treatment and hopefully get more information and context. The "It's still within normal range" email from the nurse wasn't all that reassuring. Has anyone else seen or experienced radical jumps in their light chains when nothing else (treatment or results) stays the same? Thanks.