Your Feed

Filter by
See content from
Back to the latest
Avatar
DIahanna • Admin
Multiple Myeloma Discussion • March 17
Join our Financial Connect Group
PLease join our Financial Connect group. Here you will find very important relevant information that you may find very useful in your cancer journey.
Avatar
Iliana • Admin
Multiple Myeloma Discussion • March 16
A Patient's Story: Taking Control of My Data
"It took me probably the better part of a day the first time to figure out what kind of myeloma I had." Dave Braucht’s story is a familiar one. Between different labs and multiple specialists, his medical history was scattered everywhere. By getting his genetics and lab work organized into one visual interface, he cut hours of confusion down to minutes of clarity. Dave is sharing his experience this Myeloma Awareness Month to help others feel more in control of their own data. Watch full video here: https://htree.org/myelomaawarenessmonth2026
Join us for Myeloma Awareness Month - HealthTree for Multiple Myeloma

Join us for Myeloma Awareness Month - HealthTree for Multiple Myeloma

This March, be part of HealthTree’s myeloma community and experience the latest technology designed to support and empower you!

https://htree.org/myelomaawarenessmonth2026
Avatar
Suzukiviolin25
Multiple Myeloma Discussion • March 16
ASCT vs. deferring for later
So I'm reaching out to anyone on here who has done quadruplet therapy (either dara VRD or dara KRD) and has translocation 11;14. Just wondering how you have responded to your therapy and whether you have decided to proceed to ASCT or defer that to a later time. I have one more treatment left in cycle 5. As of end of cycle 4 my M spike had decreased from 3.05 to 1.18, my kappa has gone from 103 to 21, and my IGg down from 4500 to 1780. i don't think my m spike will go to 0 by the end of cycle 6 but I'd still rather try to extend therapy at least for two more cycles to see how low I can get those levels. Just searching for those of you who may be or have been in the same situation. FYI-I am being treated at MSK.
Avatar
Ann
Multiple Myeloma Discussion • March 15
Myeloma specialist
A friend of mine on east coast was recently diagnosed with myeloma and would like to see a myeloma specialist at Dana-Farber or Memorial Sloan Kettering. I told him that I would ask if you have any recommendations for myeloma specialists at either of these organizations. I’d appreciate any names that I can pass along. Thanks!
Avatar
Mazm23
Multiple Myeloma Discussion • March 15
Menstrual cycle returned
Hi all, so i had a sct in December 2024, It didnt work unfortunately so I started treatment again the folling June 2024 and have been doing well on weekly treatment since with my number all in range, last week my period came back after 15 months and I was full sure I had gone or was in the pre menopause I had all the symptoms hot flushes, bad night sweats, and now they are all gone, has this hap o ended to anyone else? Im waiting on a referral from a gynaecologist, im just curious for anyone else, im now 38
Avatar
Annborell
Multiple Myeloma Discussion • March 14
Clinical trial
Preparing to start on a clinical trial at U of Penn. It is a new trial with Bispecific antibody Elranatamab (Elrexfio) and investigational drug Inobrodib (CCS1477). Is there anyone out there that is in this trial or anyone on one of these drugs and if so how is it going (response/side effect profile). The Bispecific is commercially available.
Avatar
Iliana • Admin
Multiple Myeloma Discussion • March 13
Join the 2026 MRD Experts Meeting
Join the conversation about MRD in multiple myeloma. 🩸 The 13th Annual Miami Myeloma MRD Meeting 2026 will bring together leading experts to share the latest research and insights on Minimal Residual Disease and its role in advancing myeloma care. If you're interested in MRD or following the latest updates in myeloma research, this is a great opportunity to learn and discuss with others in the community. 🗓️ April 10, 2026 ⏰ 7:30 AM – 5:30 PM ET 📍 Miami, FL | Virtual access available https://healthtree.org/myeloma/community/events/apr26-miami-myeloma-mrd-2026?utm_source=&utm_medium=meta&utm_campaign=socialmediaorganic&utm_content=general
Miami Myeloma MRD Meeting 2026 - HealthTree for Multiple Myeloma

Miami Myeloma MRD Meeting 2026 - HealthTree for Multiple Myeloma

MRD Meeting hosted by the Myeloma Institute at Sylvester Comprehensive Cancer Center in collaboration with the MMRF, IMF, and HealthTree Foundation

https://healthtree.org/myeloma/community/events/apr26-miami-myeloma-mrd-2026?utm_source=&utm_medium=meta&utm_campaign=socialmediaorganic&utm_content=general
Avatar
AP
Multiple Myeloma Discussion • March 12
Autophagy
Recently, one of my friends explained me the concept of autophagy and its affect on auto immune diseases. Did a 3 days of water fasting snd felt very good. I am planning to do it every month going forward. Does any one here do practice this? Any experience good or bad is appreciated.
Avatar
dshaffer11
Multiple Myeloma Discussion • March 12
Cost of Revlimid
Not sure if this really belongs here, but as of Jan 1, 2026 quantity restrictions were supposedly removed from the generic manufacturers of lenalidomide. I have medicare part D and the price that Onco360 billed medicare was exactly the same in December and January at $9973.76 for 15 mg strength and 14 day supply. I called some other pharmacies and AcariaHealth said the cost was $13,128 for 15 mg for 14 days. AllianceRx said their price w/o insurance was $11,774.30. They mentioned Health Well Grand assistance and co pay assistance. I can't promise that the price info from AcariaHealth is accurate as they may have not understood about the strength and no of days. If you haven't see it this article is worth reading. https://www.propublica.org/article/revlimid-price-cancer-celgene-drugs-fda-multiple-myeloma If you are so inclined feel free to share what you are paying for lenilidomide in case we can steer our prescribing oncologists to use the lowest cost pharmacies.
The Price of Remission: This Cancer Drug Saves Lives — but Costs a Fortune. I Wanted to Know Why.

The Price of Remission: This Cancer Drug Saves Lives — but Costs a Fortune. I Wanted to Know Why.

When I was diagnosed with cancer, I set out to understand why a single pill of Revlimid cost the same as a new iPhone. I’ve covered high drug prices as a reporter for years. What I discovered shocked even me.

https://www.propublica.org/article/revlimid-price-cancer-celgene-drugs-fda-multiple-myeloma
Avatar
ivoryDog
Multiple Myeloma Discussion • March 12
Clinical Trial
Looking for information on Arlocabtagene Autoleucel BMS-986393) a GPRCD- directed Cart - T Cell Therapy.
Thumbnail for Upfront CAR T-Cell Therapy to Upgrade Response in Myeloma. Sergio Giralt, MD | #ASH2025
Playlist: ASH 2025

Upfront CAR T-Cell Therapy to Upgrade Response in Myeloma. Sergio Giralt, MD | #ASH2025

Video details & playlist