Hello all, I am newly diagnosed (SMM since 10/2020) and will be on Dara, Velcade and Dex. I am starting treatment because I have osteoporosis and have multiple spine fractures (no lesions). I am leary about starting biphosphinates and even more terrified about starting treatment since I am very thin (undernourished) weighing 103 at 5'8". I am prone to nausea and worried it will make my back fractures worse. I am currently using a walker because I have a difficult time sustaining my core. Anyone has anything similar? I am very nervous about getting started.

Has anyone experienced diarrhea after CarT and while on prophylactics with Bactrim and acyclovir and BP meds? If so how was it resolved?

Hi everyone. Has anyone wanted to discuss CAR T as a treatment option with their doctor but were told that it wasn't right for you even though you thought you were eligible? And what did you do about it?

They are introducing Total Assist which has some great financial opportunities for some of us. Check out their website at www.uniting.patientadvocate.org for more details.

We’re heading to the mountains for a cause that unites us all. 🏔️🧡 The 2026 HealthTree Challenge: Hike & Wellness is heading to Vail, CO, this October 15–17! This transformative experience brings together patients, caregivers, and supporters for a 3-day journey of personal triumph while fostering connections that will last a lifetime. Joining the Challenge team is a commitment to your personal wellness, it strengthens our blood cancer community, and raises awareness and funds for life-changing research. Every step on that trail is a step toward a cure. We hope you join us! ✨ 📩 Email Taryn at taryn@healthtree.org to learn more or join our interest list here: https://give.healthtree.org/event/healthtree-challenge-hike-and-wellness-2026/e775590?c_src=socialmedia

A cancer diagnosis impacts more than physical health. It can deeply affect emotional well-being, too. As part of Mental Health Awareness Month, join Dr. Meagan Dwyer for a compassionate conversation on practical tools to help patients and caregivers manage stress, anxiety, and the emotional challenges of cancer. Whether you are newly diagnosed or living with cancer long term, this webinar offers evidence-based strategies to help you feel more supported and in control. 📅 May 13 | 8 PM EDT 🎥 Can’t attend live? Register to receive the recording. Register: https://healthtree.org/blood-cancer/community/events/may26-mental-health-tools-blood-cancer?utm_source=social-media&utm_medium=meta&utm_campaign=socialmediaorganic&utm_content=general

For those of you who have received or are considering applying for grants for copay, deductible, co insurance and premium reimbursement there are some great changes coming with Total Assist affective July 1. Some grants have been expanded and nothing has been reduced.

Has anyone from our group done a parasite clease? If so, which treament did you use?