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DIahanna • Admin
Multiple Myeloma Discussion • November 8, 2023
Tip: Review Your Medicare Advantage Coverage
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Everyone need to review their health insurance. If you are a Medicare enrollee and have Medicare Advantage, be aware that some providers are dropping Medicare Advantage plans. You need to call and make sure you will be covered and still in-network. Don't forget to review your prescription plan as well.
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slhenk9
Multiple Myeloma Discussion • November 8, 2023
Experiencing Swallowing Issues?
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has anyone had issues with swallowing....it seems my husband has had a change but is dealing with it....did have an endoscopy and that was good, and they did try to stretch his throat but it didn't help much....just wondering how many have this issue.
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Dherring
Multiple Myeloma Discussion • November 8, 2023
Understanding Genetic Results and Risk?
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This is from my genetic page. As this disease progresses could it change or does it remain consent? Does this help with defining my risk level. Thanks in advance.
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roseCrow
Multiple Myeloma Discussion • November 8, 2023
Struggling With Infections Despite IVIG?
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My immunoglobulins have not recovered since diagnosis 2 ½ years ago, even after SCT. I was put on IVIG in March, after back-to-back respiratory infections. I have been receiving it monthly since then, however I have had 2 more hospitalizations since then. Has anyone had similar? The specialist says my immune system is likely damaged permanently. IgA and IgM are too low to measure. IgG won’t stay jp between infusions.
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slhenk9
Multiple Myeloma Discussion • November 8, 2023
How Do You Manage Severe Back Pain?
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back pain - my husband is on Dara/pomalyst and dex and has had back pain, maybe nerve pain.....today had a pain that almost dropped him to his knees momentarily.....is this common...I know everyone is different...he does see an acupuncturist which he scheduled one today....just wondering how everyone deals with pain issues....
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wgarcia
Multiple Myeloma Discussion • November 6, 2023
Coping with Pomalyst: Flu & Brain Fog?
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HI Everyone! Anyone on the treatment course of POM/DARA/DEX. I am on round 1 day 20. The side effects I believe are the POM. It makes me feel like I have the flu and a lot of confusion and cloudiness and weakness. I was on Revlimid for induction and after SCT and had no real issues other than being tired sometimes. Anyone else have issues with POM?
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Hotrod1946
Multiple Myeloma Discussion • November 4, 2023
A Heartfelt Thank You to HealthTREE
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Thank you so much to Health TREE Multiple Myeloma for all your wonderful and helpful information! Not knowing much about MM we found this information and education invaluable.Sadly my husband passed recently so no longer need the information. Again thank you so much!
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TheBloomingSpirit
Multiple Myeloma Discussion • November 3, 2023
Managing Darzalex Sinus and Injection Site Pain?
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I have been on Darzalex fastpro injections and Pomalyst pills since May. Soon after starting both I developed Dry Sinuses with a crustation in the sinus cavity per a scope down my nasal passage. Current treatments from ENT not working so wondering if this is a side effect of the above meds and if so has anyone else had it and found a solutions. Also my stomach after so many shots is developing scar tissue and getting more painful. Has anyone else dealt with that and have any remedies? (castor oil packs?? stomach massage??) Thanks for any input.
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lavenderYak
Multiple Myeloma Discussion • November 2, 2023
Help For Tangled Hair & Itchy Scalp After Chemo?
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Hi all. My mother had to do one session of chemo a week before her stem cell collection procedure. Two weeks later she is loosing a lot of her hair and today from one day to another it got really tangled, stiff and her scalp is itchy. Any recommendations for treatment would be appreciated. Thank you.
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judyr729
Multiple Myeloma Discussion • November 2, 2023
Navigating Medicare Part D for Revlimid Coverage?
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Hello all. Does Medicare Part D usually cover Revlimid? Should we be looking for a specific Part D plan? Right now we have very good commercial insurance that fully covers it, but we will be going on Medicare with a gap plan starting in July 2024. Thank you for any suggestions you may have. We're new to Medicare.