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mikepadjen
Multiple Myeloma Discussion • April 2, 2024
Deciding on Statins With Existing Symptoms?
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I recently had my blood tested for lipids. My total cholesterol was 187 but my LDL was 92. The cardiologist recommended I go on statins, which I wasn't expecting when I saw my total was well below 200., especially when in the past I was 210 to 220 regularly. My big concern about statins is side effects. Some of the most common are low platelets, pain, diarrhea, fatigue, mental fog, and leg cramps. I have all these now! I understand everyone is different, but am looking for some wisdom from those who have faced this decision or who were in my position and decided to go on statins. Am I being too overconcerned? Thanks!
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MariaM
Multiple Myeloma Discussion • April 2, 2024
Experiencing Hand Rash on Lenalidomide?
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I’m a few weeks in to maintenance with Lenolidamide 10 mg. Could a rash on tops of my hands be related? I experienced a rash on my torso when on 20mg Revlimid but went away when it was reduced to 15mg. Thank you!
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TimJohnson
Multiple Myeloma Discussion • April 2, 2024
Digital Journaling App Recs (iOS/Mac)?
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Anyone using journaling applications? Recommendations (iOS/Mac)? We're using written notebooks and will continue to track conversations but I'm thinking I want it electronically to be able to index and search. Thanks!
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Ladams
Multiple Myeloma Discussion • March 31, 2024
Handling Family Worries About Hugs?
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I have MM and take Revlimid for maintenance therapy. My wife is worried about me shaking people's hands, hugging etc. anyone else have family members with these concerns?
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BruceFan76
Multiple Myeloma Discussion • March 29, 2024
My Watch and Wait Journey Begins
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Just back from my consultation post testing with my Myeloma Specialist at Sloan Kettering. Looks like I'm in the Smoldering camp for now. 30-40% cancerous cells, M-Spike @ 2, and Kappa/Lambda ratio at 12:69. Still waiting for the genetic testing FISH markers results which hopefully will be sometime next week. I guess there is nothing much else to do here other than watch and wait? I'm scheduled for my next blood tests at 6-weeks and 12-weeks with another PET scan in 12-weeks followed by another sit down with the doctor at that time.
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Mblopez
Multiple Myeloma Discussion • March 28, 2024
Weight Loss & New Meds: Questions & Experiences?
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weight question I keep seeing how being overweight can make any cancer more likely to relapse. Is anyone trying to lose weight and having success? Dumb question- is anyone on one of The new weight loss drugs? Is it even allowed for us?