A research study is being performed with the goal of improving outcomes for newly diagnosed multiple myeloma patients whose myeloma hasn’t responded optimally to traditional induction and stem cell transplant therapy.  Lenalidomide is traditionally used as a maintenance therapy to deepen responses after transplant, but this study aims to test whether adding CAR T therapy can further improve responses and outcomes.  Learn more about this study at: https://www.bmsclinicaltrials.com/us/en/clinical-trials/NCT06045806?cid=s_2839286 Funded by Bristol Myers Squibb.

Hello, does anyone have any advice/suggestions on IGAKAPPA myeloma with it being 70%. ? If there any hopeful stories as well as holistic stories I would greatly appreciate to hear them. Thank you

Hello! I’m pretty newly diagnosed High-Risk SMM with the complication of only having one kidney. They’re discussing starting me on D-VRd & I’m just wondering if anyone else here has kidney issues & is on this regime & how it’s working out for them? They did mention modifying the dose of one of the meds in the Quad in order to lessen the burden on the kidney. Any info anyone has would be great ~ thanks!

Good day I have been notified by my oncologist that I have to undergo a stem plant transplant has anyone done it before

Question about swimming after diagnosis of multiple myeloma. My wife was diagnosed with multiple myeloma in July 2024. She is going thru induction therapy with quad regimen with possibility of stem cell transplant in Dec 2024. She loves swimming and has been swimming for exercise for years. We are wondering if she will be able to swim again? We would like feed back from other myeloma patients about this issue. Thanks.

How long do the results of Urine and Blood Tests last for considering stem cell transplant? I have had all the tests listed since June of 2024 and I am going in for consultation on Sept 25th and was wondering if I had to repeat test.

Good morning. I am trying to up my nutrition (protein) to increase my bone health. I take calcium supplements with D3. I eat fish several times a week. Any thoughts on added protein through Whey powder? Anyone tried it?

What’s the goal of the Study? The Study aims to determine whether a whole-food, plant-based diet or certain supplements can improve the microbiome composition and slow myeloma progression in Smoldering Myeloma patients. Do all participants receive the same intervention? No. The Study has four arms: Whole-foods, plant-based meals, Curcumin, Omega-3, and Probiotics. Participants are randomized and change their diet or supplementation for 2 weeks. Want to learn more? Tap the link: https://healthtree.org/myeloma/curehub/private/research/5jLN2I1z8ORyETSwrhNY?utm_source=social+media&utm_medium=connect&utm_campaign=nutrivention&utm_content=smoldering

I was diagnosed with MM in 2019. Treated with dara, revlimid, and dex until my MM specialist took me off revlimid and dex. Side effects of constipation, insonmia, and low energy all improved, except neuropathy. Found on tne web that the supplement alpha lipoic acid would help neuropathy. It got rid of my pain but not the numbness. My numbness has increased a little each year, effecting my balance so severely that I have to use a walker. Any advice would be greatly appreciated. Thank You, Bob D

Bone Marrow Biopsy today! Praying for great results but why does it take weeks to get the results?

Has anyone been treated with a bispecific for myeloma , reached MRD- and then had a discussion with their doctor about bi-weekly vs monthly maintenance?

Sauna use. My wife and I used to enjoy our home traditional sauna and have been using it for years. My wife was recently diagnosed with multiple myeloma and is going through induction treatment. I am hoping she could enjoy it again after the Myeloma is in remission. When we asked my wife’s Myeloma specialist if it was ok for her to use it he did not give us a clear answer. I am looking for feedback from other Myeloma patients and what did their doctors tell them? Thanks

Personalizing Treatment Strategies Based on Multiple Myeloma Patient Genetics at Diagnosis: The objective of this study is to assess bone marrow biopsy slides obtained during your initial diagnosis of multiple myeloma and then define biological subtypes (DNA, RNA, protein, and other types of assays for tumor and none-tumor), predict prognosis, and potentially guide treatment decisions in the future, and anticipate the clinical outcomes associated with various myeloma treatment options and treatment combinations available to patients with multiple myeloma. This study is open to all myeloma patients regardless of where they are being treated. Patients only need to sign a consent form and connect their medical records, which takes less than 5 minutes. To learn more, click here: https://healthtree.org/myeloma/curehub/private/research/tvtF4ehxp6Kj233pQMFE