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Multiple Myeloma Discussion • December 9, 2024
Sharing a Helpful Interview on Relapse Fear
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The psychological challenges at this stage can be daunting. A former blood cancer patient has written a book about her mental battle over possible relapse. She was interviewed on Fresh Air recently: https://www.npr.org/2024/12/05/g-s1-36763/hypochondria-body-made-of-glass-caroline-crampton
Stay away from Dr. Google, and other lessons learned about hypochondria

Stay away from Dr. Google, and other lessons learned about hypochondria

Caroline Crampton developed excessive health anxiety after being treated for cancer as a teen. In A Body Made of Glass she chronicles her experience with hypochondria and the history of the condition.

https://www.npr.org/2024/12/05/g-s1-36763/hypochondria-body-made-of-glass-caroline-crampton
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MariaJ • Admin
Multiple Myeloma Discussion • December 8, 2024
Sharing Myeloma News From ASH 2024
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The HealthTree News Interviews Team is on the ground at ASH 2024 today! 🎉 We're all set to bring you the lastest Myeloma news. Don’t miss out! Thanks to all the doctors who are participating 🙌🏼
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khakiGrasshopper
Multiple Myeloma Discussion • December 7, 2024
Life Insurance Recommendations for Survivors?
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Hello Everyone, I'm 55 and by the Grace of God, MRD-Negative since September 2022. Is anyone aware of the best value for the dollar life insurance policies for MM survivors? Thank you!
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Getta293
Multiple Myeloma Discussion • December 6, 2024
Experiencing Body Shakes After Kyprolis?
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Yesterday after my maintenance of Kiprolis , my whole body was shaking , does anyone had that experience or is it because I didn’t take dex this time ???
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ChioOsuna
Multiple Myeloma Discussion • December 5, 2024
Webinar: Learn How to Contribute to a Cure
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✨ Meet Jenny Ahlstrom, a myeloma patient and the Founder & CEO of the HealthTree Foundation 🩺🌟. Join us to learn how HealthTree is investing in cures 💡🧬. Jenny will be joined by: 👉 Jay Hydren, PhD - Sr. Director of Research 👉 Laura Gilman - Chief Growth Officer 👉 Jeff Mulder - Myeloma Patient & Cure Contributor 📚 Participants will discover how they can contribute to a cure and expedite research 💪🔬. This Webinar will include a presentation followed by a Q&A session 💬❓. Register here: https://healthtree.org/myeloma/community/events/dec2024-healthtree-investing-cures?utm_source=social+media&utm_medium=connect&utm_campaign=EOY&utm_content=general
How HealthTree is Investing in Cures - HealthTree for Multiple Myeloma

How HealthTree is Investing in Cures - HealthTree for Multiple Myeloma

Join Jenny Ahlstrom and experts in a webinar on curing myeloma, featuring insights, research updates, and ways to contribute. Q&A included!

https://healthtree.org/myeloma/community/events/dec2024-healthtree-investing-cures?utm_source=social+media&utm_medium=connect&utm_campaign=EOY&utm_content=general
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gknautz
Multiple Myeloma Discussion • December 5, 2024
Great Response to Induction - Still Need SCT?
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I am a 59 yo that was diagnosed in July (spine mets, 1q, 4/14 translocation) started on Isa/rev/vel/dex after 3 cycles (today) counts completely normal, no cytogenetic observed, pet scan clear. Questions: Is it normal that the abnormal cytogenetics clear?? Scheduled for transplant at end of this month, would the clear lab reports change decision to go directly to sct?
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gknautz
Multiple Myeloma Discussion • December 5, 2024
Experiences With Iberdomide for Maintenance?
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Hi All, Anyone have experience with Iberdomide? Going in for my SCT end of month and considering going on the BMS trial of Iderdomide vs low dose Rev for maintenance.
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Kneyed
Multiple Myeloma Discussion • December 5, 2024
Experiences With Mepron During Maintenance?
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Salute to all fellow survivors 👍🏻 After 8 cycles of DVRdara Im now going into remission/ maintenance treatments. 💪 My Dr. is doubling up my Acyclovir and Adding atoquavone = Mepron to my new regime of 10ml Lenolidamide and once a month DarzalexFP . Anyone getting experience with Mepron? I’m kind of questioning this new Pharma used to treat Malaria / fungal lung infections. Grateful for your response.
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ChioOsuna
Multiple Myeloma Discussion • December 4, 2024
Sharing ASH 2024 Highlights for Patients
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📍 We’ll be live from ASH 2024 in San Diego this week to share: ✅ Data presented by HealthTree ✅ Interviews with top experts ✅ Simple, patient-friendly recaps Stay tuned for articles and videos highlighting what YOU need to know! #ASH2024 #HealthTree #PatientAdvocacy #InnovationThatSavesLives #ASHMeeting #Hematology #BloodCancer #MedicalResearch #CancerCare
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Marga
Multiple Myeloma Discussion • December 4, 2024
Managing Revlimid Insomnia and Urination?
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Hi there, I have a question re: insomnia and Revlimid. My husband started maintenance treatment recently, after SCT, of Revlimid and Dara, every few weeks. This will change eventually to once a month or so. He seems to be tolerating well, except that with adding Revlimid again to his meds, he has to get up multiple times at night due to full bladder. And either that or the medication itself is also creating insomnia that's been hard to manage. Has anyone found good solution for this? Is it temporary as his body adjust to taking Revlimid again? Thanks!
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Long4Tahoe
Multiple Myeloma Discussion • December 4, 2024
Experiences With CAR-T Prep Chemo?
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As I prepare for Car-T Infusion I have a concern. I will have three days of Fludarabine and Cytoxan prior to receiving my Car-T infusion. I'm told it's a pretty heavy chemo. My greatest concern is that I am so very very sensitive to drugs. Did you have to have this chemo and how did it go for you? Thanks so very much, I appreciate every one of you.
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ChioOsuna
Multiple Myeloma Discussion • December 4, 2024
Heads-Up: 2025 Drug Coverage Changes
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Did you hear the news? 📣 Starting January 1, 2025, there will be significant changes to Medicare and other insurance plans' coverage of formulary vs. non-formulary drugs. Find out here: https://healthtree.org/myeloma/community/articles/possible-2025-drug-coverage-changes?utm_source=social+media&utm_medium=connect&utm_campaign=article&utm_content=general
Possible Drug Coverage Changes - HealthTree for Multiple Myeloma

Possible Drug Coverage Changes - HealthTree for Multiple Myeloma

All blood cancer patients and their loved ones should review their insurance plans and make sure their treatments are still being covered for 2025.

https://healthtree.org/myeloma/community/articles/possible-2025-drug-coverage-changes?utm_source=social+media&utm_medium=connect&utm_campaign=article&utm_content=general
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MariaJ • Admin
Multiple Myeloma Discussion • December 3, 2024
Support Research This Giving Tuesday
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EVERY donation this Giving Tuesday will speed breakthroughs in blood cancer! We are the only nonprofit laser focused on getting patient data and tools to researchers they didn’t have before. This important work simply cannot be achieved any other way. Your tax-deductible gift will connect leading researchers with patient data on a scale that powers life-changing discoveries. Invest in Cures. Invest in HealthTree. https://bit.ly/3BbRFow
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Isaac
Multiple Myeloma Discussion • December 3, 2024
Enjoying Wine Again After ASCT?
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Hello, anyone enjoy drinking wine? Just wondering how long after ASCT before I can enjoy a glass or two with a meal? I am now 3 months post ASCT and I haven't had a sip yet. Thanks 🙏