Understanding Each Other's NonSecretory Myeloma Experience
The NonSecretory Community meets to discuss how we are doing, ask and answer each others questions, and enjoy quality virtual time together.
Come prepared to share- what good things happened to you this past month? What obstacles are you dealing with in your healthcare at the moment? Are you self-advocating or would you like advice from the community? How is your caregiver?
Vicki welcomes the community and introduces the agenda.
Share your nonsecretory myeloma experience with us. We look forward to getting to know you.
Audrey Burton-Bethke
Audrey joined the HealthTree Foundation as the Myeloma Community Program Director in 2020. While not knowing much about myeloma at the start, she has since worked hard to educate herself, empathize and learn from others' experiences. She loves this job. Audrey is passionate about serving others, loves learning, and enjoys a nice mug of hot chocolate no matter the weather.
Vicki Jones
In the 20 years since her diagnosis Vicki has learned a lot about fighting myeloma. In her own words, "When I was diagnosed it felt like I was the only one in the world with this disease. After always having been a bit of a loner, suddenly I yearned for someone to talk to that understood what I was going through. Now I want to be that someone for other myeloma patients and caregivers". Vicki has been on just about every chemo regimen and has had a stem cell transplant. Every drug regimen has worked against her Myeloma but she has never been in complete remission. She recently became a nonsecretor and is learning to deal with this new diagnosis. "When I was diagnosed in 2004 it made me sad to think I would never know what it was like to grow old. Now when I look in the mirror and see all the wrinkles, I’m overjoyed!"