Tackling Hard Days and Difficult Discussions with the Nonsecretory Myeloma Community

Name: Tackling Hard Days and Difficult Discussions with the Nonsecretory Myeloma Community
Start: 2023-03-08T13:00:00-05:00
End: 2023-03-08T14:00:00-05:00

Mar 08, 2023

01:00PM - 02:00PM EST

Online Event

Overview

The nonsecretory myeloma community gathers to have a group discussion about tough days and disappointing doctor visits. This nonsecretor myeloma journey is a battle and sometimes we need connection with others experiencing the same thing to feel better. Let's talk about our experiences and things that help us retain hope and keep going. We look forward to a real, beneficial discussion with our community.

Agenda

1:00 PM

Introductions

Vicki Jones

Vicki introduces the agenda of the event.

1:05 PM

Group Discussion

Audience

Speakers & Moderators

Audrey Burton-Bethke

Audrey joined the HealthTree Foundation as the Myeloma Community Program Director in 2020. While not knowing much about myeloma at the start, she has since worked hard to educate herself, empathize and learn from others' experiences. She loves this job. Audrey is passionate about serving others, loves learning, and enjoys a nice mug of hot chocolate no matter the weather.

Vicki Jones

In the 20 years since her diagnosis Vicki has learned a lot about fighting myeloma. In her own words, "When I was diagnosed it felt like I was the only one in the world with this disease. After always having been a bit of a loner, suddenly I yearned for someone to talk to that understood what I was going through. Now I want to be that someone for other myeloma patients and caregivers". Vicki has been on just about every chemo regimen and has had a stem cell transplant. Every drug regimen has worked against her Myeloma but she has never been in complete remission. She recently became a nonsecretor and is learning to deal with this new diagnosis. "When I was diagnosed in 2004 it made me sad to think I would never know what it was like to grow old. Now when I look in the mirror and see all the wrinkles, I’m overjoyed!"