Side Effect Management for NonSecretory Myeloma Patients

Name: Side Effect Management for NonSecretory Myeloma Patients
Start: 2023-01-11T13:00:00-05:00
End: 2023-01-11T14:00:00-05:00

Jan 11, 2023

01:00PM - 02:00PM EST

Online Event

Overview

In this interactive event, we will be discussing side effects that non-secretory myeloma patients experience and sharing solutions. Side effects might include pain during bone marrow biopsies, bone pain, fatigue, and anxiety due to PET Scans, MRIs or BMBs. By sharing the side effects that affect us, and the solutions we have tried that have been helpful (or unhelpful), we can help each other. Todd Foster, Head of Product at HealthTree will also join us to share a short demo on our Side Effect Solutions product. This product aims to gather real world data so all myeloma patients can see what works and what doesn't for other patients going through the same side effects. We look forward to discussing with you!

Agenda

01:00 PM

Introductions

Vicki Jones

Vicki introduces the agenda of the event.

01:05 PM

Group Discussion

Audience

In this interactive event, we will be discussing side effects that non-secretory myeloma patients experience and sharing solutions.

01:45 PM

Patient Solution Demo

Todd Foster

Todd shares a short demo of our Side Effect Solutions product.

Speakers & Moderators

Audrey Burton-Bethke

Audrey joined the HealthTree Foundation as the Myeloma Community Program Director in 2020. While not knowing much about myeloma at the start, she has since worked hard to educate herself, empathize and learn from others' experiences. She loves this job. Audrey is passionate about serving others, loves learning, and enjoys a nice mug of hot chocolate no matter the weather.

Vicki Jones

In the 20 years since her diagnosis Vicki has learned a lot about fighting myeloma. In her own words, "When I was diagnosed it felt like I was the only one in the world with this disease. After always having been a bit of a loner, suddenly I yearned for someone to talk to that understood what I was going through. Now I want to be that someone for other myeloma patients and caregivers". Vicki has been on just about every chemo regimen and has had a stem cell transplant. Every drug regimen has worked against her Myeloma but she has never been in complete remission. She recently became a nonsecretor and is learning to deal with this new diagnosis. "When I was diagnosed in 2004 it made me sad to think I would never know what it was like to grow old. Now when I look in the mirror and see all the wrinkles, I’m overjoyed!"

Todd Foster

Todd Foster is the Director of Growth & Strategy at HealthTree. He spent 12 years at MD Anderson Cancer Center before joining Jenny Ahlstrom to help launch HealthTree. Todd specializes in improving the patient experience and helping patients understand their options so they can become more informed and active decision-makers with their care teams. Todd is passionate about using technology to make healthcare easier and help patients live better lives while also using the power of patient data to advance research and accelerate the search for cures.