Getting to Know Others Living With PCL

Name: Getting to Know Others Living With PCL
Start: 2022-01-13T13:00:00-05:00
End: 2022-01-13T14:00:00-05:00

Jan 13, 2022

01:00PM - 02:00PM EST

Online Event

Overview

Whether you are a plasma cell leukemia patient, family member, or friend, join us on January 13th for a meet and greet virtual event. Leader and veteran PCL patient, Paul Kleutghen will share his story. Feel free to share your story with others and connect with those who burden the same journey as you- we can find joy and support together. We look forward to connecting with you!

Agenda

01:00 PM

Host Introductions

Audrey Burton-Bethke

Audrey introduces the agenda of the event and featured speaker Paul Kleutghen.

01:05 PM

Meet and Greet Intros

Audience

Share your story with others and connect with those who burden the same journey as you!

01:25 PM

Resources Shared

Paul Kleutghen

Paul shares his story of living with PCL as well as some resources that he has found helpful.

Speakers & Moderators

Paul Kleutghen

I am a patient diagnosed in 2014 with primary plasma cell leukemia (pPCL), a rare and aggressive variant of multiple myeloma and have been very fortunate to find treatment at the division of Cellular Therapy at the Duke University Cancer Institute. My wife, Vicki, and I have two adult children and a grandson who is the ‘light of my life’. Successful treatment has allowed Vicki and I to do what we love best : traveling the world, albeit it with some extra precautions to keep infections away. My career in the pharmaceutical industry has given me insights that I am currently putting to use as an advocate to lower drug pricing, especially prices for anti-cancer drugs and, very specifically, CAR-T therapies, with recent contributions posted by Health affairs, the Institute for Clinical and Economic Review and the Centers for Medicare and Medicaid Services.

Audrey Burton-Bethke

Audrey joined the HealthTree Foundation as the Myeloma Community Program Director in 2020. While not knowing much about myeloma at the start, she has since worked hard to educate herself, empathize and learn from others' experiences. She loves this job. Audrey is passionate about serving others, loves learning, and enjoys a nice mug of hot chocolate no matter the weather.