A Guided Discussion: What Tests Are Used to Measure Your Non-Secretory Myeloma?

Name: A Guided Discussion: What Tests Are Used to Measure Your Non-Secretory Myeloma?
Start: 2022-03-08T13:00:00-05:00
End: 2022-03-08T14:00:00-05:00

Mar 08, 2022

01:00PM - 02:00PM EST

Online Event

Overview

Join Group Leader Vicki Jones as she shares her experience and the general tests needed to test myeloma. Then join the guided discussion: what tests are used for non-secretory myeloma? how often are they administered? Come ready to share your experience and contribute to the research we are beginning.

Agenda

01:00 PM

Introduction

Audrey Burton-Bethke

Audrey introduces the agenda of the event and featured speaker Vicki Jones.

01:05 PM

Opening Discussion

Vicki Jones

Vicki shares more of her myeloma journey and explains typical tests that are used to test mainstream myeloma.

01:15 PM

Group Discussion

Audience

Come prepared to share your experience with testing. What tests do you or your loved one receive in order to monitor your myeloma? How often are these tests administered? Which do you feel shows most accurate results and why?

Speakers & Moderators

Vicki Jones

In the 20 years since her diagnosis Vicki has learned a lot about fighting myeloma. In her own words, "When I was diagnosed it felt like I was the only one in the world with this disease. After always having been a bit of a loner, suddenly I yearned for someone to talk to that understood what I was going through. Now I want to be that someone for other myeloma patients and caregivers". Vicki has been on just about every chemo regimen and has had a stem cell transplant. Every drug regimen has worked against her Myeloma but she has never been in complete remission. She recently became a nonsecretor and is learning to deal with this new diagnosis. "When I was diagnosed in 2004 it made me sad to think I would never know what it was like to grow old. Now when I look in the mirror and see all the wrinkles, I’m overjoyed!"

Audrey Burton-Bethke

Audrey joined the HealthTree Foundation as the Myeloma Community Program Director in 2020. While not knowing much about myeloma at the start, she has since worked hard to educate herself, empathize and learn from others' experiences. She loves this job. Audrey is passionate about serving others, loves learning, and enjoys a nice mug of hot chocolate no matter the weather.