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Lifelonglaugh
Myelofibrosis Discussion • September 1, 2025
Experiencing More Energy on Jakafi: How Long?
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I have always been very active. For the first year+ of my diagnosis I struggled with fatigue issues to the point that it significantly impacted my quality of life, largely because of my inability to be outside playing and exercising. I have been taking Jakafi for about eight months and on my current dose for four months. I am almost back to my normal activity level! (Hooray!) What I’m wondering is, how long can I expect my current “normal” energy level to last? Anyone else been through this process? Thanks! John
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SALVATORE
Myelofibrosis Discussion • July 29, 2025
Coping With Metallic Taste Post-SCT?
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Hi, Hope all is going well. I had my SCT on July 08th, I’m +21 days. My question is “How long does the metallic taste last?” I cannot eat anything. Any help would be appreciated. Thank You Sal. L