Community Gather Event: Now and Next: A Conversation on Shared Fears of Living with Myelofibrosis- Not Recorded

This event will not be recorded. We encourage you to attend live.

Living with Myelofibrosis often means balancing the immediate challenges of today with the "what-ifs" of tomorrow. Join us for an honest, advice-free conversation where we hold space for the unique fears of the present and the uncertainties of the road ahead.By registering for this group, you are agreeing to abide by the Community Agreement & Guidelines found below

Community Agreement & Guidelines

1. Support, Not Science (Medical Boundaries)

1. Shared Experience only: This is a space for emotional connection, not medical advice or clinical consultation.

2. "I" over "You": Frame your story with "This worked for me" rather than "You should try this."

3. Trust the Pros: Always consult your oncology team before making any changes to your care plan.

2. The Circle of Trust (Privacy)

1. Confidentiality: What is said here stays here. Do not share members' names or stories outside the group.

2. Digital Lockdown: No recording or screenshots allowed

3. Respectful Communication

1. Step Up, Step Back: Be mindful of how much space you take; leave room for quieter voices to be heard.

2. Listen to Understand: Focus on witnessing each other's truths without interrupting or "fixing."

4. Emotional Safety & Boundaries

1. No "Toxic Positivity": You don't have to be "brave" here. Anger, sadness, and fear are just as welcome as hope.

2. Right to Pass: Participation is always optional. It is perfectly okay to just listen.

3. Self-Care First: You are encouraged to step away or leave the call if a topic becomes too heavy.