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Pheba1
Multiple Myeloma Discussion • August 13
This and That
Does any one else have other health issues beside MM. I have MM with 10% cryoglobulins, no bone lesions on PET scan. Currently showing remission. I have MGRS, which is Monoclonal Gammopathy of Renal Significance. My disease was discovered because kidneys were being wiped out and BP was spiking out of control. BP now 125/72. So, that is all good. I have had an illness called Polymyalgia Rheumatica (PMR) for over 20 years. Giant Cell Arteritis for at least ten years. Both cause pain and fatigue. Revlimid causes pain and fatigue. I also have SEVERE Diverticulosis. The severe in all caps is how the doctor wrote it on the colonoscopy report. Between that and the diarrhea caused by Revlimid it is a three ring circus. I have a chronic hip problem that ended up being torn hip tendons. That is going to require surgery. The tendon damage may be from inflammation from the PMR. So, how does a person cope? I think I have done a great job so far without getting down or depressed. I kept a positive attitude through SCT, and induction chemo. This hip surgery may be a bridge too far. Recovery takes about 6 months. I am wondering if there are others who are coping with multiple health issues.
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Vic63
Myelofibrosis Discussion • August 13
living with MF
Can a short limited fast help with the treatment of myelofibrosis?
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DIahanna • Admin
Multiple Myeloma Discussion • August 10
Changes to Blood Cancers United Copay program
Hello All Effect Sept 1st, Blood Cancers United will be changing their copay program. They will only be providing copay assistance to Medicare, Medicaid and TriCare enrollees, shifting away from private insurance for specific disease funds. This shift will affect: ALL, CML, MDS, MPNs, Myeloma, and Waldenstrom Macroglobulinemia
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MyelomaValarie • Admin
Multiple Myeloma Discussion • August 10
Return to work after treatment
For those who returned to work after treatment, what helped you figure out what you could realistically handle? Did you return gradually, change your hours or responsibilities, or have to advocate for accommodations at work? #blackhealth
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slhenk9
Multiple Myeloma Discussion • August 10
any one on the JNJ trial
my husband has been on the JNJ trial since July 1 and has been experiencing knifing pains in back and lower back....been in hospital 5 times and maybe 12 days....just can't stay at home cause he can't get out of bed with the pain at times and had to call the ambulance twice....anyone else heard of this...are we the only ones experiencing this
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JennG
Multiple Myeloma Discussion • August 7
Alternative support
Hello! I’m scheduled for SCT in September. I’m working with a PT to be as fit as possible and feel good about that but I’m wondering if anyone has found an alternative treatment that supports their care. I want to feel like I’m doing everything in my power to get myself back to full health. Thanks!
As we continue building our testicular cancer community, we’d love to learn from your experiences and insights. We’ve put together a few questions that we hope will spark conversation and help all of us better navigate life with testicular cancer. Feel free to answer one question, a few, or all of them, whatever you’re comfortable sharing. Every perspective is valuable, and we’d love to hear from you. 1. What is one thing you wish someone had told you when you were first diagnosed with testicular cancer? 2. What was the hardest part of your testicular cancer journey that you didn’t expect? 3. How did you decide which treatment option was right for you?
As we continue building our brain cancer community, we’d love to learn from your experiences and insights. We’ve put together a few questions that we hope will spark conversation and help all of us better navigate life with brain cancer. Feel free to answer one question, a few, or all of them, whatever you’re comfortable sharing. Every perspective is valuable, and we’d love to hear from you. 1. What is one thing you wish someone had told you when you were first diagnosed with brain cancer? 2. What was the hardest part of your brain cancer journey that you didn’t expect? 3. How did you decide which treatment option was right for you?
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Todd Foster • Admin
Kidney Disease Discussion • August 7
We’d love to learn from your experiences and insights
As we continue building our kidney cancer community, we’d love to learn from your experiences and insights. We’ve put together a few questions that we hope will spark conversation and help all of us better navigate life with kidney cancer. Feel free to answer one question, a few, or all of them, whatever you’re comfortable sharing. Every perspective is valuable, and we’d love to hear from you. 1. What is one thing you wish someone had told you when you were first diagnosed with kidney cancer? 2. What was the hardest part of your kidney cancer journey that you didn’t expect? 3. How did you decide which treatment option was right for you?
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Todd Foster • Admin
Lung Cancer Discussion • August 7
Welcome to HealthTree's Community site for patients
HealthTree’s community posts are a community of fighters, survivors, and supporters dedicated to helping you navigate every step of this journey. Post or ask the community a question, lean on our collective strength, share your victories (big or small), and let’s take this one day at a time, together.
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Todd Foster • Admin
Bladder Cancer • August 7
We’d love to learn from your experiences and insights
As we continue building our bladder cancer community, we’d love to learn from your experiences and insights. We’ve put together a few questions that we hope will spark conversation and help all of us better navigate life with bladder cancer. Feel free to answer one question, a few, or all of them, whatever you’re comfortable sharing. Every perspective is valuable, and we’d love to hear from you. 1. What is one thing you wish someone had told you when you were first diagnosed with bladder cancer? 2. What was the hardest part of your bladder cancer journey that you didn’t expect? 3. How did you decide which treatment option was right for you?