Interested in patients experience with bispecific therapy.

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HealthTree has been working in the blood cancer world since 2018. We are now moving to other cancer types, and we believe that while cancer is a word, it isn't your whole story. This is a community of fighters, survivors, and supporters dedicated to helping you navigate every step of this journey. Post and lean on our collective strength, share your victories (big or small), and let’s take this one day at a time, together.

any suggestions for pain management, my husband is on morphine right now but that doesn't always help completely...looking for suggestions

When I was first diagnosed with MM, I met with an Oncologist at my local cancer center and then through another article about best multiple myeloma doctors came across Dr. James Berenson in LA. I was able to get an appointment fairly quickly which maybe should have been a red flag. Anyway, I met with Dr. Berenson and decided to follow his protocol for treatment. The local oncologist when seeing the plan commented that he was recommending using a chemo agent doxorubicin that had been around a long time. I was also to get 40 mg of Dex twice a week and Velcade. The long and short of it is that it was not an effective treatment for me and once we backed off on the Dex due to the side effects, my myeloma numbers starting going the in the wrong direction telling me that the other medications weren’t doing much if anything. For me Dr. Berenson’s protocol was not effective and set my recovery back. In hindsight I wish I had listened to the other oncologist who was recommending a current standard of care protocol.

Is anyone familiar with recent study conclusion supporting discontinuing maintenance therapy after 2. years

Has anyone seen data that suggest third generation TK Inhibitors have the same efficacy as second generation TK Inhibitors when treating CML with MECOM Rearrangement?

It appears I have gotten colitis from a bispecific. Anyone else experience this? If so how was it treated?

My husband has had Multiple Myeloma since 2008. We are scheduled to go to the University of Arkansas Multiple Myeloma Center to have his T cells extracted this week. He will have the Car-T Cell Therapy with Carvykti in September. What advice would you give to him or myself, as his caretaker during the upcoming procedures? Thanks!

Any program available to assist with out of pocket costs for cataract extraction and lenses. Cataract that are the side effect of steroid use.

I have been MRD negative for almost 5 years on a clinical trial which has ended. I am told that I can stop treatment completely, or continue on my regimen of one injection every 2 months without side effects. If I stopped and then relapsed , most likely I would go back for Talquetamab but would need the step up process which might include a hospital stay, and to expect the usual side effects like loss of nails, loss of taste, etc . It is is a difficult choice. What do others think?

What length of time are you seeing of relief from MM after ASCT? I just saw my Oncologist holding form 8/2018 and two years off any therapy.