Going onto Pom After induction of DRVd starting in March, an m-spike of 0.1 by October and maintenance of Dara, my m-spike has inched back up to 0.6. Yay me. My specialist and local are putting me on Pom 1mg to tap it back down. For those who’ve been on Rev and then gone onto Pom, is Pom easier to tolerate? Fatigue, nausea, headache, sleep disruption? Is Pom Rash (Pom Pimples? Pom Pox?) a thing? Thanks.

For those of you on Employer Health Plans, Be aware that your rates may be going yuo 7-8% next year according to a study done by Mercer.

Hello. Looking for advice on lower extremity swelling. My wife is currently taking Spironolactone 25mg and it is working. She cannot take Lasix due to an ingredient’s closeness to a sulfa, to which she is allergic. The issue is every night for 3 hours, she has intense pain in her lower extremities. Going to try switching from evening to morning for the medication. Anyone have any advice/experience with this?

For the last 13 cycles I have been taking Velcade, Darcelex, and dexamethasone. My Lambda Light Chains have steadily increased are presently at 75! These drugs are not working! I am totally confused as to which protocols to move forward with! A list of choices are Stem Cell Transplant, Car-t therapy, Bi-Specific antibodies, or a mixture of Carfilzomib, Pomalidomide and Dexamethasone. My goal is to receive the best treatment which will have the longest lasting remission and has the least side-effects.

Hello I recently relapsed 18 months after transplant and I am wondering if anyone has stop taking Dex or just reduced the dosage in their new therapy regiment. Thanks

I recently spoke with a representative from United healthcare/AARP to obtain information about joining a Medigap policy. I currently have Medicare/Medicad A&B coverage along with Part D drug coverage. The agent stated that if I we're to get a policy in New York I would be terminated off the Medicad portion. My 6 month window to purchase with out underwriting is expiring this week. I would appreciate any feedback Thanks

Hello, I am in my 3rd year of remission from MM. My mental health is slowly deteriorating as my husband has had to leave the USA after being here with me under 1yr. He was my sole supporter, assisted with me in every aspect of this journey from shopping, doctor visits and my mental support. I am asking if anyone knows who I can approach to address a letter written to the US Immigration consulate/Jamaican visa office expressing my need to have my husband here with me in the US indefinitely due to my health condition? I have previously submitted a letter from my Oncologist, but that doesn't seem to be sufficient in these times with immigration. I appreciate any suggestions you all may have. Thank you

My wife has MM and we live in Plymouth, MI Is there a Zoom support meeting group?

Hello everyone My husband is considered high risk Multiple Myeloma failed the stem cells transplant this May, I was going through his test and found the Gene testing, I asked Chat GPT to explain in simple terms and he is diagnosed with 17p/TP53 loss, has anyone been diagnosed with 17p/TP53? My oncologist never mentioned or explained it, only she kept on telling me he is high risk Has any one had the CAR T CARVICTY with some good results with 17p? It will help me a lot with your experience. Thank you

Hello , Has anyone experienced an increase of CMV 38 days post Cart T? If so how did you progress and/or treat? Hasn’t shown up until now and post IVIG…. Not sure it is related though. Hope you are all doing well🙏🏼