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Sharing My AML & Transplant Journey
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I’m Lucy, I’m from Bermuda. Since my diagnosis in June 2024 I have been living in Boston, USA while receiving treatment for AML and recovering from a stem cell transplant. I’m looking forward to returning home once I reach 1 year post-SCT: November 2025.
I was diagnosed out of the blue - I tried to donate blood but my hemoglobin was way too low. A couple blood tests later and I got my AML diagnosis and an urgent referral to Dana-Farber Cancer Institute in Boston. I feel lucky to be treated there. I was freaked when I first walked in but immediately felt enveloped in love, safety and expertise.
My mutations were NPM1, DNMT3A & GATA2 so I had 7+3+GO induction and two rounds of HIDAC consolidation. MRD was persistent and my oncologist realised my supposedly favourable mutations were behaving like intermediate ones, so I swapped to the stem cell transplant treatment route. I received my new stem cells in November ‘24 from an amazing wonderful unrelated 25yo man. He’s still anonymous to me but I hope we’ll eventually meet.
My recovery is going well, just a few niggles with skin and liver enzymes. I’m gradually regaining energy and fitness and staying safe while my immune system rebuilds. Now counting the days til my first re-birthday!
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