I was wondering if anyone had injection site reactions with Kyprolis IV. I have had 3 cycles as part of DKd (Dara only once a month). From the beginning burning $ stinging at infusion site. As cycles progressed., they traveled 5” up my arm. IV first & second in Cycle 3 were mercifully painful. Onc nurse suggested pulling it and starting another vein. I declined since we had about 7 min. to go! Both nights were terrifying: splitting headache; total body burning up (but no fever); body aches. In morning as I forced myself to get moving, these slowly dissipated. My oncologist said it wasn’t an AE but an “Infusion rxn” So I did a thorough online search & found that kry is toxic the endothelial cells lining veins😳. Remedies included diluting Kry w/ dextrose- saline; slower infusion rate; stopping and restarting. Yesterday I had my 3rd kry+ dexameth. I reported my experiences w/ the two previous infusions to the administering nurse and asked if dilution was possible. Given my prior experiences she would not proceed. She contacted my onc. who agreed to add a bag of dextrose+saline. Bingo! Zero pain during or after infusion. Slight headache; slight “body heat”, no feeling like a truck hit me! Just a note for those using or considering Kyprolis. This was MY experience and I hope remedy. Good luck!

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Hi Everyone! It's Chio from HealthTree, I want to invite you to join us to our next online event! 🌟 On November 18th at 03:00PM EST hear from 3 myeloma patients who have been living with the disease for 10+ years. They’ll share what’s helped them adjust, manage side effects, and find balance in daily life. Get practical tips, real stories, and encouragement from people who truly understand. 👉 Whether you're newly diagnosed or years into your journey, you’re welcome here. Register now!: https://healthtree.org/myeloma/community/events/nov25-living-with-myeloma-insights?utm_source=social_media&utm_medium=connect&utm_campaign=SMorganic&utm_content=general

Has anyone used motixafortide as a mobilizing agent before stem cell collection? If so, could you tell me where you were treated? I had a “failed” collection last week (in my first line of treatment) and am trying to decide how/whether/where to try again. Thank you in advance.

Good afternoon, I'm curious to hear if anyone has suffered with NK due to severe dry eye post diagnosis and SCT. I started with severe dry eye after my stem cell transplant. What I did not know is I also had NK, which muted the pain signals, kind of like neuropathy. I pushed through the blurred vision and light sensitivity, thinking dry eye is a benigne condition. When my vision became bad enough, that it was interfering with my work and quality of life, I sought out a dry eye specialist. I was immediately diagnosed with NK and told I was at high risk of losing my left eye. I had a Prokera placed that same day, which stayed on for a week. I then had a Prokera placed on my right eye the following week, and then another on my left the week after. All while waiting on an insurance approval for eye drops called Oxervate, which run $100k for an eight week supply. I am on week three of my treatment and have not noticed any improvements. I brought this up to my oncologist, but was told it is not related to my cancer or treatment. If anyone has had a similar experience or knows anyone that has, I would be interested to hear how you or they are doing. Thank you!

The Shut down has effecttively ended. The Affordable Care Act Subsidies will expire at the end of the year

I have MGUS. How do I find my M Spike number. I am new to this community.

🚨Breaking Myeloma News The FDA has approved Darzalex Faspro (daratumumab + hyaluronidase) as the first treatment for adults with high-risk smoldering multiple myeloma. This approval marks a major step toward earlier intervention and better outcomes. 🧬 Learn more: https://healthtree.org/myeloma/community/articles/25-daratumumab-darzalex-faspro-hrsmm?utm_source=social_media&utm_medium=meta&utm_campaign=socialmediaorganic&utm_content=general #WeCareWeCure #Myeloma #FDANews #BloodCancerResearch

Im on Talvey and seem to have lost my sense of taste. Has anyone experienced this before and how long would it last for?