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Sharon
Multiple Myeloma Discussion • January 17
Kidney failure because of multiple myeloma
Is there any research being done on kidney failure because of MM? Seem there must be some way to unclog the kidney filters 🙏 🙏 🙏. Very interested in any information you can provide.
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KIgKappa
Multiple Myeloma Discussion • January 16
Questioning if I have fibromyalgia or Darza related
Anyone develop, diagnosed or have fibromyalgia approx. symptoms, 4-9 months after ASCT? I am not implying ASCT caused this. Could very well be the darza Faspro too, but I "think" I recall complaining before I started any maintenance drugs. Thanks.
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NormaL1
Multiple Myeloma Discussion • January 15
Celiac disease
As if SMM and getting older isn’t enough, I was just diagnosed with celiac disease. Both diseases measure immunoglobulins so I am not sure what is what. Can anyone help me out? I won’t be seeing my oncologist until the summer to ask him.
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Iliana • Admin
Chronic Lymphocytic Leukemia Discussion • January 13
New CLL Treatment Study: Learn More
If you or a loved one have chronic lymphocytic leukemia and are interested in a potential new treatment option, learn more about the SENTRY-CD19 study at this website: https://app.patientwing.com/campaign/healthtree This study aims to evaluate the safety and effectiveness of the study drug as a potential treatment option for CLL. See if you pre-qualify today—there’s no obligation to participate!
Leukemia and Lymphoma Clinical Study | PatientWing

Leukemia and Lymphoma Clinical Study | PatientWing

Currently recruiting. A clinical study for adults with leukemia and lymphoma. You or a loved one may be eligible for this study, which is evaluating if an investigational medication, VNX-101, may be a potential treatment option.

https://app.patientwing.com/campaign/healthtree
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Iliana • Admin
Acute Lymphocytic Leukemia Discussion • January 13
New ALL Clinical Trial Opportunity
If you or a loved one have acute lymphoblastic leukemia and are interested in a potential new treatment option, learn more about the SENTRY-CD19 study at this website: https://app.patientwing.com/campaign/healthtree. This study aims to evaluate the safety and effectiveness of the study drug as a potential treatment option for ALL. See if you pre-qualify today—there’s no obligation to participate!
Leukemia and Lymphoma Clinical Study | PatientWing

Leukemia and Lymphoma Clinical Study | PatientWing

Currently recruiting. A clinical study for adults with leukemia and lymphoma. You or a loved one may be eligible for this study, which is evaluating if an investigational medication, VNX-101, may be a potential treatment option.

https://app.patientwing.com/campaign/healthtree
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cncahoon • Admin
Multiple Myeloma Discussion • January 13
AML and CLL grants through the PAN foundation are open!
We talked about it in the financial webinar last week, but figured we should mention here as well, grants for AML and CLL are still open. If you have another cancer or health issue, there are other grants that are open as well. I will add the link to check what is open below. Here is a link to the webinar: https://healthtree.org/myeloma/community/events/jan26-financial-blood-cancer-assistance
The PAN Foundation Financial Assistance Program - HealthTree for Blood Cancer

The PAN Foundation Financial Assistance Program - HealthTree for Blood Cancer

Join Diahanna and guests as we review the PAN grants as well as how to find the financial assistance programs that you may qualify for.

https://healthtree.org/myeloma/community/events/jan26-financial-blood-cancer-assistance
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Banklady
Multiple Myeloma Discussion • January 13
NEED HELP WITH SLEEP - DEXAMETHOSONE
I had my first DVRD treatment of first cycle yesterday, 1/12. I did not sleep at all last night. Is it the DEX? I took 2 Tylenol PM which sometimes works for me (I have a history of insomnia) but that did nothing. I have a script for Zolpidem which I took on Sunday night because I was anxious about 1st treatment (which usually works for me). I do not want to keep taking Zolpidem regularly because it causes dependency for me. How long will this last? Any advice, experience with this would be greatly appreciated.
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DIahanna • Admin
Multiple Myeloma Discussion • January 12
CancerCares Co-pay Assistance Program
Cancer Care financial Assistance online application program is not available, effective Jan 9th, until after they have transitioned to a new system. TBA
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DIahanna • Admin
Multiple Myeloma Discussion • January 12
ACA Enrollment and issues
You have until January 15th to enroll in ACA or Obama Care. Although the subsidies have not been reenacted. The House has voted to expand the subsidies for 3 years but it has not yet come to the Senate for vote. President Trump has signaled he will Veto the bill if it comes to his desk.
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ChioOsuna
Multiple Myeloma Discussion • January 9
Let us know!
Let us know!
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Hd51pr1z
Multiple Myeloma Discussion • January 9
No M-Spike in Partial Remission: Anyone Else?
Hello everyone I have no m- spike in blood or urine. Partial remission they tell me. But I do have small areas of active MM in bone marrow. Has anyone experience. I am taking relimid 5mg, darlex fasPro and dexamon. Any comments, help!!
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BobH1
Multiple Myeloma Discussion • January 9
Bone Marrow Biopsy prior to CAR-T
Greetings! I have a question about bone marrow biopsy just done prior to my CAR-T on 20 Jan. Compared to January 2024 (first treatments started) to January 2026 all parameters of BONE MARROW LEUKOCYTE DIFFERENTIAL are in the normal range except NRBC BM which went from 3% to 42%. What does this mean? Also, the BONE MARROW ASPIRATE were all normal. Thanks so much.