HealthTree is phasing out its Journal. I get it. Resources can best be used in other areas. This is the second time I’ve used a journaling website that has closed down. My family and friends enjoy updates about my health that I post there. I’ve heard of a couple other sites that people use but can’t remember the names. What site works best for you?

The House today passed a measure to restore expired Obama Care (Affordable Care Act) subsidies. They voted to extend them for 3 years. Now it has to pass the GOP Senate, which will be a tall order. Keep checking back for updates.

Good morning, has anyone experienced vomiting/diarrhea while on Bactrim? My dad has been on it for approximately 4 months but in the last 5 weeks has gotten sick once a week (usually 6-7 days in between) with these symptoms. At first we thought it was the food but now I’m thinking it’s medication of some type and this is the only thing he takes once a week. Thank you!

Hello friends. I'm 54 years old, living in the US, was diagnosed in spring of 2024, high risk. I work at a medical school at a major hospital system, where I also get my treatment. I am a single mom with one 18-year-old daughter who is a freshman in college. Her tuition is covered, and her room and board are being paid for out of a 529 plan. I'm currently in remission. I am beginning to think about the next several years of my life. I have a Roth IRA and retirement at work. I'm not ready to retire yet (I don't think it would be financially feasible at this point, would like my retirement funds to continue to grow). But when I think about the future, I want to be able to enjoy myself while I have a good quality of life, and I also want to set my daughter up for her future success. I've talked to my retirement fund's financial advisor, but he didn't really have any answers or guidance for me. Is anyone else here in this boat, or have you decided to retire early, or have you decided to keep working, etc.? And for those who are financial experts, what are the ramifications of retirement before 65, when you have an incurable cancer?

Need to have Car-T soon. Can anyone tell me the kind of car-t you have had .the side effects and how long it took you To recoup…. Feeling nomal

We were recently told my brother had 1q gain. Looking for anyone feedback on treatment options for this type of MM.

Greetings! I was diagnosed with Stage 1. IGgA Lambda multiple myeloma Jan 2022. Induction therapy 6 cycles RVD. ASCT August 2022. Maintenance therapy starting Jan 2023 with Revlimid 10mg, 14 days on 14 days off. Last week I had a sudden onset of Raynard’s Syndrome to my index and ring finger on my left hand. It resolved quickly under warm water. I notified my hematologist and my pcp. Both said not to worry unless it continues to happen or does not resolve. My question is: have any of you who have a similar situation as myself had this happen to you? Thank you so much!

'Posting to get started to connect with others. We're overwhelmed & not pleased with practitioners we've dealt with so far. No treatment thus far. We were dealing with 2 different oncologists with differing approaches & one of them recently told us to make a choice. Soon after we chose him, we received a letter from him stating he was leaving. We recently met with him. He advises to start treatment. We are trying to obtain consultation with another oncologist in the office. The office service to connect with someone since has been difficult.

I just received my results for this test. There is not a line item mentioned for a Monoclonal Protein, could this mean there wasn't an m-spike detected? I had a CAR T in August 2025 and have had a very low m-spike since but was told it could just disappear. Because I haven't experienced a report with no m-spike, I am uncertain how to read the report. I won't be seeing my local oncologist again until the end of January. So, I am hoping someone here may be able to help interpret it. Thank you!

I might have mentioned this before in this forum but am reading research that contradicts regarding symptoms that those of us with MGUS/SMM are showing when so much that you read says it does not have symptoms. What is correct? What symptoms have you all experienced? My biggest symptom seems to be fatigue at unexpected times.......... Thanks for the input. I think they need to research this more

I have done ASCT on 28 February 2025 but I’m still experiencing low waist back pain has anyone experience this and how did you overcome it ?

Anyone hear anything about this med that was used in trials and showed great promise, possibly avoiding a SCT by using this drug and lowering numbers and the disease in general.

Does the caregiver have any restrictions for what they can personally do while the patient is at their appointments during the first few weeks of an outpatient ASCT? We were told by the hospital that they discourage caregivers from joining all appointments so they don't get burned out, so this is downtime for the caregiver. During this downtime, can the caregiver engage in normal activities? Curious what others experiences have been. Can the caregiver go exercise for example? What about going to lunch, a coffeeshop, the gym, or grocery shopping? Or do they have to stay in isolation. It seems they should be fine to.engage in some normal activities provided they use precautions around the patient, just like hospital staff.

Question for people who had CarT treatment: What was your free light chains and M spike around 100 days after the treatment?

What is it like going through CAR-T? What advice would you give a person to make it go smoother?