Your Feed

Filter by
See content from
Back to the latest
Avatar
Michael
Chronic Lymphocytic Leukemia Discussion • March 13
VACCINES AND CLL
Peace all ✌️ I was just diagnosed with Lukemia CLL. Apparently I’ve had high white blood cell counts for the last 13 years but just found out about it recently. My Cancer Doctor wants me to receive a host of inoculations because of my low immunity to fighting off potential illnesses. The shots she listed were For Corona Virus. Shingles. Cocil pneumonia, flu etc. I have had the Moderna vaccine in the past. I’m just so Leary now about all of these stories about illnesses and weird happenings with these vaccines lately. Wondering if I would be better off without them. Anybody care to weigh in ???
Avatar
AP
Multiple Myeloma Discussion • March 12
Autophagy
Recently, one of my friends explained me the concept of autophagy and its affect on auto immune diseases. Did a 3 days of water fasting snd felt very good. I am planning to do it every month going forward. Does any one here do practice this? Any experience good or bad is appreciated.
Avatar
dshaffer11
Multiple Myeloma Discussion • March 12
Cost of Revlimid
Not sure if this really belongs here, but as of Jan 1, 2026 quantity restrictions were supposedly removed from the generic manufacturers of lenalidomide. I have medicare part D and the price that Onco360 billed medicare was exactly the same in December and January at $9973.76 for 15 mg strength and 14 day supply. I called some other pharmacies and AcariaHealth said the cost was $13,128 for 15 mg for 14 days. AllianceRx said their price w/o insurance was $11,774.30. They mentioned Health Well Grand assistance and co pay assistance. I can't promise that the price info from AcariaHealth is accurate as they may have not understood about the strength and no of days. If you haven't see it this article is worth reading. https://www.propublica.org/article/revlimid-price-cancer-celgene-drugs-fda-multiple-myeloma If you are so inclined feel free to share what you are paying for lenilidomide in case we can steer our prescribing oncologists to use the lowest cost pharmacies.
The Price of Remission: This Cancer Drug Saves Lives — but Costs a Fortune. I Wanted to Know Why.

The Price of Remission: This Cancer Drug Saves Lives — but Costs a Fortune. I Wanted to Know Why.

When I was diagnosed with cancer, I set out to understand why a single pill of Revlimid cost the same as a new iPhone. I’ve covered high drug prices as a reporter for years. What I discovered shocked even me.

https://www.propublica.org/article/revlimid-price-cancer-celgene-drugs-fda-multiple-myeloma
Avatar
ivoryDog
Multiple Myeloma Discussion • March 12
Clinical Trial
Looking for information on Arlocabtagene Autoleucel BMS-986393) a GPRCD- directed Cart - T Cell Therapy.
Avatar
XimenaG • Admin
Chronic Lymphocytic Leukemia Discussion • March 12
Managing Nutrition During Treatment
🥗 Nutrition During Blood Cancer Treatment: Eating Well Through Treatment and Recovery Eating well during blood cancer treatment can be challenging. Changes in appetite, taste, and side effects can make daily meals difficult, but the right nutrition strategies can help support your strength and recovery. Join oncology dietitian Peter A. Adintori, MS, RD-AP, CSO, CDN, CNSC, for a practical webinar designed for patients and caregivers. You’ll learn: • How to build a flexible and sustainable eating pattern during treatment • Tips to manage appetite loss and taste changes • Food safety essentials for patients with weakened immune systems • Nutrition strategies to support recovery and long-term health 📅 March 19, 2026 ⏰ 2:30 – 3:30 PM EDT 💡 Can’t attend live? Register anyway, and we’ll send you the recording. Register here: https://healthtree.org/blood-cancer/community/events/mar26-nutrition-blood-cancer-treatment-recovery?utm_source=social_media&utm_medium=meta&utm_campaign=socialmediaorganic&utm_content=general
Nutrition During Blood Cancer Treatment - HealthTree for Blood Cancer

Nutrition During Blood Cancer Treatment - HealthTree for Blood Cancer

Join oncology dietitian Peter A. Adintori, MS, RD-AP, CSO, CDN, CNSC, to talk about nutrition for blood cancer patients focused on practical strategies.

https://healthtree.org/blood-cancer/community/events/mar26-nutrition-blood-cancer-treatment-recovery?utm_source=social_media&utm_medium=meta&utm_campaign=socialmediaorganic&utm_content=general
Avatar
XimenaG • Admin
Myelofibrosis Discussion • March 12
Webinar: Nutrition Tips for Treatment & Recovery
🥗 Nutrition During Blood Cancer Treatment: Eating Well Through Treatment and Recovery Eating well during blood cancer treatment can be challenging. Changes in appetite, taste, and side effects can make daily meals difficult, but the right nutrition strategies can help support your strength and recovery. Join oncology dietitian Peter A. Adintori, MS, RD-AP, CSO, CDN, CNSC, for a practical webinar designed for patients and caregivers. You’ll learn: • How to build a flexible and sustainable eating pattern during treatment • Tips to manage appetite loss and taste changes • Food safety essentials for patients with weakened immune systems • Nutrition strategies to support recovery and long-term health 📅 March 19, 2026 ⏰ 2:30 – 3:30 PM EDT 💡 Can’t attend live? Register anyway, and we’ll send you the recording. Register here: https://healthtree.org/blood-cancer/community/events/mar26-nutrition-blood-cancer-treatment-recovery?utm_source=social_media&utm_medium=meta&utm_campaign=socialmediaorganic&utm_content=general
Nutrition During Blood Cancer Treatment - HealthTree for Blood Cancer

Nutrition During Blood Cancer Treatment - HealthTree for Blood Cancer

Join oncology dietitian Peter A. Adintori, MS, RD-AP, CSO, CDN, CNSC, to talk about nutrition for blood cancer patients focused on practical strategies.

https://healthtree.org/blood-cancer/community/events/mar26-nutrition-blood-cancer-treatment-recovery?utm_source=social_media&utm_medium=meta&utm_campaign=socialmediaorganic&utm_content=general
Avatar
XimenaG • Admin
Acute Lymphocytic Leukemia Discussion • March 12
Nutrition During Blood Cancer
🥗 Nutrition During Blood Cancer Treatment: Eating Well Through Treatment and Recovery Eating well during blood cancer treatment can be challenging. Changes in appetite, taste, and side effects can make daily meals difficult, but the right nutrition strategies can help support your strength and recovery. Join oncology dietitian Peter A. Adintori, MS, RD-AP, CSO, CDN, CNSC, for a practical webinar designed for patients and caregivers. You’ll learn: • How to build a flexible and sustainable eating pattern during treatment • Tips to manage appetite loss and taste changes • Food safety essentials for patients with weakened immune systems • Nutrition strategies to support recovery and long-term health 📅 March 19, 2026 ⏰ 2:30 – 3:30 PM EDT 💡 Can’t attend live? Register anyway, and we’ll send you the recording. Register here: https://healthtree.org/blood-cancer/community/events/mar26-nutrition-blood-cancer-treatment-recovery?utm_source=social_media&utm_medium=meta&utm_campaign=socialmediaorganic&utm_content=general
Nutrition During Blood Cancer Treatment - HealthTree for Blood Cancer

Nutrition During Blood Cancer Treatment - HealthTree for Blood Cancer

Join oncology dietitian Peter A. Adintori, MS, RD-AP, CSO, CDN, CNSC, to talk about nutrition for blood cancer patients focused on practical strategies.

https://healthtree.org/blood-cancer/community/events/mar26-nutrition-blood-cancer-treatment-recovery?utm_source=social_media&utm_medium=meta&utm_campaign=socialmediaorganic&utm_content=general
Avatar
XimenaG • Admin
Acute Lymphocytic Leukemia Discussion • March 12
Register! Nutrition During Blood Cancer
🥗 Nutrition During Blood Cancer Treatment: Eating Well Through Treatment and Recovery Eating well during blood cancer treatment can be challenging. Changes in appetite, taste, and side effects can make daily meals difficult, but the right nutrition strategies can help support your strength and recovery. Join oncology dietitian Peter A. Adintori, MS, RD-AP, CSO, CDN, CNSC, for a practical webinar designed for patients and caregivers. You’ll learn: • How to build a flexible and sustainable eating pattern during treatment • Tips to manage appetite loss and taste changes • Food safety essentials for patients with weakened immune systems • Nutrition strategies to support recovery and long-term health 📅 March 19, 2026 ⏰ 2:30 – 3:30 PM EDT 💡 Can’t attend live? Register anyway, and we’ll send you the recording. Register here: https://healthtree.org/blood-cancer/community/events/mar26-nutrition-blood-cancer-treatment-recovery?utm_source=social_media&utm_medium=meta&utm_campaign=socialmediaorganic&utm_content=general
Nutrition During Blood Cancer Treatment - HealthTree for Blood Cancer

Nutrition During Blood Cancer Treatment - HealthTree for Blood Cancer

Join oncology dietitian Peter A. Adintori, MS, RD-AP, CSO, CDN, CNSC, to talk about nutrition for blood cancer patients focused on practical strategies.

https://healthtree.org/blood-cancer/community/events/mar26-nutrition-blood-cancer-treatment-recovery?utm_source=social_media&utm_medium=meta&utm_campaign=socialmediaorganic&utm_content=general
Thumbnail for Upfront CAR T-Cell Therapy to Upgrade Response in Myeloma. Sergio Giralt, MD | #ASH2025
Playlist: ASH 2025

Upfront CAR T-Cell Therapy to Upgrade Response in Myeloma. Sergio Giralt, MD | #ASH2025

Video details & playlist
Avatar
KCASTLE28
Multiple Myeloma Discussion • March 12
ELREXFIO (elranatamab)
Anyone else currently on Elrexfio or have had Elrexfio as either treatment plan or bridging or maintenance?