Community post
Experiencing Palpitations and Low Platelets
Hello,
I am 48 years old Female and healthy. I had palpitations back in Sept and had BW done and my platelet was low and neutrophils were low as well. I had BW repeated every month until I finally saw a hematology on Feb 11, 2026 and Feb 19 I had my bone marrow biopsy. Results came back March 4 and I was classified in very high risk MDS due to complex karyotype and 2 TP53 at 34%. I have no idea what caused this and my doctor just said it was just how my cells divide. 😬 My counts stayed stable and so there was a debate if I should start on chemo or not. Since I am high risk I opt in to start with 3 day oral inqovi. BW were done weekly post treatment and my counts dropped significantly. I didn’t need transfusion as per parameters. My counts started climbing up a bit last week and just had another BW today and waiting on results. The ultimate plan is to have allogenic stem cell transplant. My two siblings have been tested and waiting on results. So far I feel fine just a bit short of breath when I climbed a really steep stairs like 50steps. I have been walking daily and doing some light weight exercise. Fasting intermittently and eating healthy. Any other advise you guys can provide while I wait for my transplant?
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