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charcoalQuetzal
Multiple Myeloma Discussion • May 13, 2023
CAR T Recovery: What to Expect at Home?
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I just found out my current treatment isn't working anymore & am looking at doing a CAR T trial or Carvytki.. Anyone doing one? Wondering how much help you needed once you were at home..
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bronzePanda
Multiple Myeloma Discussion • May 13, 2023
Still 'Newly Diagnosed' Before Starting Treatment?
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I was diagnosed in late 2016 with MGUS...more testing put me in the Smoldering MM category in 2017 and around a year later based on a few BMB's my numbers put me at officially at MM. We've watched my labs and imaging closely for years and it appears in January 2023 my Free Light Chain numbers skyrocketed, still showing no M-spike in blood (never have, weird huh?!) and still no CRAB symptoms. Odd question, but am I still considered "Newly Diagnosed" since I've had no treatment of any kind?
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peachCrocodile
Multiple Myeloma Discussion • May 12, 2023
Balancing Prostate Radiation and Myeloma Care?
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I’m on darzelax fast pro monthly revlimid zometa and get b12 shots. Now I have prostate cancer and they want me to start radiation therapy 5 days a week for 5 weeks. Did anyone go through this? Looking for some insight on what to expect. My oncologist said I need to stop the revlimid but nothing else.
Thumbnail for What are platelets? What is considered a low platelet level for someone with What is hemoglobin and why do people with acute myeloid leukemia experience low levels?? How would I feel if my platelet count is low?
Playlist: Understanding AML Labs

What are platelets? What is considered a low platelet level for someone with What is hemoglobin and why do people with acute myeloid leukemia experience low levels?? How would I feel if my platelet count is low?

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Toothpals
Multiple Myeloma Discussion • May 10, 2023
Questions on Scan Frequency & Kappa Light Chains
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A patient with active mm was on chemotherapy infusions two years and then put immediately on revlimid... How often should a pet scan be done since it has been ongoing? What is a range of kappa light free chain be around? Believe me I am searching high and low for answers before I bother you 😔 Do they have a book Multiple myeloma for Dummies
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violetStingray
Multiple Myeloma Discussion • May 9, 2023
Seeking Relief From Prolonged Neuropathy?
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I am on darzalex FastPro, thank God, I've been experiencing neuropathy in my extremities for sometime now, I get episodes of stabbing pain that may last up to 15 hours, lately recently I've gotten or had an episode thats lasted so far for 3 days, anybody experience this and if so how did you finally get relief