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Olly58
Multiple Myeloma Discussion • February 16, 2023
Sharing My CAR-T Journey and Next Steps
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I went through CAR-T in November 22. Spent the minimum of 10 days in hospital. I did great, no fever, CRS or neurotoxicity. Spent the remainder of 30 days in a hotel a mile away. The set up was great. The program covered some of the cost. The cell therapy Dr.’s were great, I was not part of a clinical trial, just research study. That’s the good news, the bad news is CAR-T didn’t work. 30 days after being released from cell therapy program I developed pressure and pain in my abdomen. CT-PET reveled plasmacytomas surrounding my kidneys and adrenal glands..Twice a day radiation helped get things under control. Will be starting a new Chemotherapy treatment soon.
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