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JoeStreit
Multiple Myeloma Discussion • May 30, 2023
Navigating ASCT With a New Cancer Diagnosis?
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Prostate cancer I am scheduled for stem cells transplant June 20 .did a mri of my prostate on a scale of 1-5 it’s a 5 that’s it’s cancer . Has anyone had a transplant when they found another canxer . Also have a small tumor on my kidney , so small not even worried about that . Any input would be appreciated. The 2 dept are going to talk and get back to me
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Regina
Multiple Myeloma Discussion • May 29, 2023
Managing Jaw/Chin Numbness and Pain?
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Has anyone had success with a solution for jaw and chin numbness and burning/pain? My mother has been suffering from immense pain in that area due to a lesion in the mandible; painkillers only work temporarily and the doctor has advised us to avoid radiation to the face for now. Any advice or learnings from experience with this would be appreciated! Thank you
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Dave P
Multiple Myeloma Discussion • May 24, 2023
Managing Spine Fracture Pain: What Helps?
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Have you had spine fractures? Khypoplasty didn't work for me so I'm wondering what other pain medications /injections besides oxy with aceto might help? Gapabentin? steroid injections? Is Zometa worth the risk of jaw damage?
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sapphireFly
Multiple Myeloma Discussion • May 24, 2023
Bridging to CAR-T: Best Drug Options?
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I am about to collect my cells at City of Hope this coming Tuesday. I'm curious what people/doctors think is the best bridge drug while the cells are being altered? Part of the challenge is; I'm reading it takes 4-8 weeks, and occasionally, the process fails and you have to start over.
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pmfkelley33
Multiple Myeloma Discussion • May 24, 2023
Tips for Guiding New Members to Join Healthtree?
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Is it just me or does anyone else find it difficult to tell coachees where to sign up and join healthtree? Maybe I can't see it, as I am already signed up and the system recognizes me as being signed up. I have had friends with MM (not coachees through HT) who have gone to the site, and simply signed up for the email subscription but that is it. Is Healthree tracking the number of new members, and considered making the sign up more navigable? I would appreciate any tips or comments.
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pmfkelley33
Multiple Myeloma Discussion • May 24, 2023
Navigating Healthtree University: Any Tips?
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Is it just me or does anyone find Healthree University hard to navigate. I know its under Apps, but can coachees and the average Joe find it. Then when there how to find the videos on the drugs and experts? It now seems to be focused just on a few basic courses. Again, if I am a coach, and find it hard to navigate, how do we expect coachees and members to? I would appreciate any tips or comments.
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Glyndon
Multiple Myeloma Discussion • May 24, 2023
Experiences With Dara, Pomalyst, and Dex?
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Hi, all, I am about to start my third round of treatment. Have been in remission from Sept 2020 and just zoomed into relapse. Previously, RVD & SCT in 2014 and KPD in 2020. Got along well with those though final higher dose of Kyprolis was challenging. I have not been on maintenance. Dr. is recommending Dara, Pomalyst and dex. Any comments on this mix? Thanks in advance.