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Sharing My Journey: Smoldering to Treatment
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In 2015 I went to a doctor for an unrelated reason and they did some specialized blood tests. One of them showed that I had a marker for MM and I was sent to a blood cancer doctor. For years I went in once a year-then twice a year and slowly little by little my Mspike and IgG would go up a little-then down a little-I never had any symptoms but little by little I finally reached the smoldering phase-Naively I told myself year after year that it was never really going to become "real"" MM. This fall my numbers were right on the treat or wait line. My doctor recommended treating. I as shocked-as I really had convinced myself it wouldn't happen to me-but he convinced me that if I started treatment now hopefully I could avoid some of the bad outcomes so I agreed. So in January I started with 25mg of Rev plus 325 mg of aspirin. I mostly read of other patients taking a trio of drugs. I go to a very reputable cancer center and my doctor is known for his research and treatment with bone marrow transplants-so I know I am in good hands. I am 77 years old and in good health otherwise. My M spike has decreased by a small amount for the last 2 months. I am tolerating the rev pretty well-other than the fluctuating GI problems and some fatigue I''m doing well. Sorry this is so long-but thats my story and why I consider myself to be newly diagnosed
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