Hi everyone! Fatigue is something many people living with MPNs (ET, PV, MF) experience, but it can show up differently for each person and is still not fully understood. HealthTree is partnering with MPN specialist John Mascarenhas, MD, to better understand how fatigue affects daily life, emotional well-being, and how people cope. 🕒 The survey takes about 15–25 minutes and includes questions about fatigue patterns, triggers, and real-life impact. Your experience can truly make a difference in helping researchers improve care and quality of life for MPN patients. 👉 Learn more here:https://healthtree.org/myeloproliferative-neoplasm/curehub/private/research/TIWa4HkKxF3OI183UGmV?utm_source=&utm_medium=meta&utm_campaign=socialmediaorganic&utm_content=general

Hi everyone! Fatigue is something many people living with MPNs (ET, PV, MF) experience, but it can show up differently for each person and is still not fully understood. HealthTree is partnering with MPN specialist John Mascarenhas, MD, to better understand how fatigue affects daily life, emotional well-being, and how people cope. 🕒 The survey takes about 15–25 minutes and includes questions about fatigue patterns, triggers, and real-life impact. Your experience can truly make a difference in helping researchers improve care and quality of life for MPN patients. 👉 Learn more here:https://healthtree.org/myeloproliferative-neoplasm/curehub/private/research/TIWa4HkKxF3OI183UGmV?utm_source=&utm_medium=meta&utm_campaign=socialmediaorganic&utm_content=general

Hi everyone! Fatigue is something many people living with MPNs (ET, PV, MF) experience, but it can show up differently for each person and is still not fully understood. HealthTree is partnering with MPN specialist John Mascarenhas, MD, to better understand how fatigue affects daily life, emotional well-being, and how people cope. 🕒 The survey takes about 15–25 minutes and includes questions about fatigue patterns, triggers, and real-life impact. Your experience can truly make a difference in helping researchers improve care and quality of life for MPN patients. 👉 Learn more here:https://healthtree.org/myeloproliferative-neoplasm/curehub/private/research/TIWa4HkKxF3OI183UGmV?utm_source=&utm_medium=meta&utm_campaign=socialmediaorganic&utm_content=general

$10,000 available through Patient Advocate Foundation: https://copays.org/funds/multiple-myeloma/ Household Income Requirements: 500% or less of Federal Poverty Guideline (FPG) (adjusted for Cost of Living Index (COLI) and number in household) Insurance Requirements: Medicare, Medicaid, or Military Benefits Residency Requirements: Must reside and receive treatment in the United States. Also $8000 from Health Well Foundation for Medicare patients: https://www.healthwellfoundation.org/fund/multiple-myeloma-medicare-access/ Household Income Requirements: 500% or less of Federal Poverty Guideline (FPG) (adjusted for Cost of Living Index (COLI) and number in household) Insurance Requirements: Medicare Federal Poverty Guidelines for 2026 Annual Income Persons in Family 500% 1 $79,800.00 2 $108,200.00 3 $136,600.00 4 $165,000.00 5 $193,400.00 6 $221,800.00 7 $250,200.00 8 $278,600.00

I’m will be participating in the trispecific clinical trial at University of Penn and wanted to know if anyone else has and your experience. Thank you.

I am in a good remission, 6 years ago I had RVD, no bone marrow transplant and have been on Rev 10 mg for maintenance. I had a Bone Marrow Biopsy 16 months ago which showed 116 MM Cells per Million. Not MRD but pretty close. My month labs come back as negative in blood work but Dr. Is suggesting we complete another BMB to see if we can get an MRD result which could start the clock on the end of Rev maintenance. Not sure I'm in the mood for another BMB at the moment, for those of you that are in CR but not MRD neg what is your frequency of BMB . I know everyone is different and every DR has a varied approach but just looking for some feed back on what other people are being asked to do as far as Frequency of Biopsy. Thank you and wishing you all wellness and healing.

Has anyone out there been changed to Pomalidamide from Pomalyst? I have been on Pomalyst for 9 years and doing great and I hate to change now.Has anyone been on Pomalidamide for awhile and still having the same results. I know they say they are the same drug but sometime not quite . Any insight would be greatly appreciated. Thank you JC

Since I had a clean PET scan and I am MRD negative through my bone biopsy and blood work. does the 17 P deletion still apply to me?