I had an SCT in Jan, 2022 and for about a year now I've been 21/7 cycle with 5mg revlimid after a monthly blood test. My August tests came back with low neutrophil counts and the oncological pharmacist pre-empted my cycle, said wait a week, redo the test and wait to hear from us before you start up again. I did that and they said the wbc levels were a little bit better, and to wait another week - maybe it'll fix itself - and repeat the process. Meanwhile, I'm extra concerned about infection and due to fly back east next month to visit my grandson. Has anybody had any experience with this? Thank you!

Does acupuncture provide any benefits to patients that are suffering from blood cancers and disorders? So the good news is that the answer is yes; it has a number of benefits on several levels. And the other very good news is that it’s very safe. Take a listen. https://www.beyondyourdiagnosis.org/q-and-a/does-acupuncture-provide-any-benefits-to-patients-that-are-suffering-from-blood-cancers-and-disorders/

Today is a good day; tomorrow will be an even brighter one! FDA Approves Talquetamab for Relapsed/Refractory Multiple Myeloma: https://www.onclive.com/view/fda-approves-talquetamab-for-relapsed-refractory-multiple-myeloma

I’m new to this group and joined because I have relapsed and may be starting the car-t therapy soon. I wanted to “hear” how it’s working for other myeloma patients. Thank you for your thoughts❤️

Hi, If anyone had to take Sarclisa or Selinexor, can you please share what side effects did you experience? Also, how did you respond to these? Thanks in advance

Hi, Did anyone go through Sarclisa and Selinexor treatment and can share what side effects they experienced? Thanks

Hi All, I apologize for my earlier statement about my oncologist asking if I wanted to drive home and call the ambulance or drive self to hospital. I thought it was a very strange question. I asked him about it at Trmt today and was satisfied with his answer. This is not for those hearing this first time. Anyway I should and do apologize for speaking too fast.

My husband received CAR-T treatment on 5/21. He was then offered an opportunity to participate in a clinical trial using Cevostamab as maintenance follow up to CAR-T. He began this on 7/20. He has had two doses with the step up dosing being used. Thus, he has only had one full dose. After the full dose, he developed a small cough which remains today. One week after the full dose, he developed a full body rash. Has anyone else taking Cevostamab had a similar experience with cough and delayed rash?

Hi all, I just received a light chain Myeloma diagnosis last week. It is scary but, it is partially a relief to finally know what has been causing my recent health problems (extreme hypertension, Stage 3 Kidney disease and strong fatigue and shortness of breath) . I'm 51 and my condition is advanced enough that my oncologist seems to be recommending immediate chemotherapy followed by stem cell transplant within a few months..... I'm overwhelmed with the different types of treatment offered and concerned about making such important life altering decisions right away although I understand the urgency to treat early. I will be going to get a 2nd opinion and see a Myeloma specialist, Dr. Waxman, at the University of Pennsylvania tomorrow and hope to learn more about treatment options. I have a couple questions..... 1) To those who have been through treatments...In hindsight, what do you wish you would have known when first diagnosed ?? 2) Is it wise to jump into chemotherapy and Stem cell transplants right away or are there other treatment options that you might recommend that I should consider first ( I realize this question is extremely difficult to answer) . Any advice you can share with a noob is greatly appreciated. Thank you!

I had Carvykti May 9, 2023. For eradication of myeloma , it was great. I am MRD negative! BUT I am still suffering with low hemoglobin, blood transfusions help some. And extremely low platelets. Blood transfusions don’t work as well for platelets because of their short lives. I have just passed my 90 days and feel discouraged about this. I am told that my marrow is healthy and these numbers will pop up! Are there others out there that have the side effects of low platelets and low hemoglobin? My white cells are fine.

my husband was on revlimid 5 mg for 3 yrs and it isn't working any more, so tomorrow he will start darzalex, dex and pomalyst....any comments about these 3 drugs