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DIahanna • Admin
Multiple Myeloma Discussion • May 12
Total Assist
For those of you who have received or are considering applying for grants for copay, deductible, co insurance and premium reimbursement there are some great changes coming with Total Assist affective July 1. Some grants have been expanded and nothing has been reduced.
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Debbie
Multiple Myeloma Discussion • May 12
Parasite Cleanse
Has anyone from our group done a parasite clease? If so, which treament did you use?
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cyanWoodpecker
Anaplastic Large Cell Lymphoma Discussion • May 9
Post CAR T cutaneous lymphoma
I had CAR-T for multiple myeloma in July, 2024, and I have been in remission since. However, after developing many ugly sores on my leg early this year, I was diagnosed with Car T associated anaplastic large cell cutaneous lymphoma with cytotoxicity and rapid propagation. I am being treated at Moffitt for this. To say this is rare is an understatement. There are approximately 25 cases in existence. Period. It is a very serious, if not grim, diagnosis. Due to it's rarity, there is scant data on survivorship. I would like to plan out the time I have with family events, but I have no idea what the range of my survivorship might be. Has anyone received a similar diagnosis, or have community information on what my famiy and I might expect? Thanks