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azbobmorrison
Multiple Myeloma Discussion • September 21, 2024
Pre-SCT Test Validity: How Long Do They Last?
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How long do the results of Urine and Blood Tests last for considering stem cell transplant? I have had all the tests listed since June of 2024 and I am going in for consultation on Sept 25th and was wondering if I had to repeat test.
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Julia
Multiple Myeloma Discussion • September 19, 2024
Thoughts on Whey Protein for Bone Health?
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Good morning. I am trying to up my nutrition (protein) to increase my bone health. I take calcium supplements with D3. I eat fish several times a week. Any thoughts on added protein through Whey powder? Anyone tried it?
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Iliana • Admin
Multiple Myeloma Discussion • September 18, 2024
New Nutrition Study for Smoldering Myeloma
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What’s the goal of the Study? The Study aims to determine whether a whole-food, plant-based diet or certain supplements can improve the microbiome composition and slow myeloma progression in Smoldering Myeloma patients. Do all participants receive the same intervention? No. The Study has four arms: Whole-foods, plant-based meals, Curcumin, Omega-3, and Probiotics. Participants are randomized and change their diet or supplementation for 2 weeks. Want to learn more? Tap the link: https://healthtree.org/myeloma/curehub/private/research/5jLN2I1z8ORyETSwrhNY?utm_source=social+media&utm_medium=connect&utm_campaign=nutrivention&utm_content=smoldering
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bobd3454@gmail.com
Multiple Myeloma Discussion • September 18, 2024
Managing Worsening Neuropathy and Balance?
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I was diagnosed with MM in 2019. Treated with dara, revlimid, and dex until my MM specialist took me off revlimid and dex. Side effects of constipation, insonmia, and low energy all improved, except neuropathy. Found on tne web that the supplement alpha lipoic acid would help neuropathy. It got rid of my pain but not the numbness. My numbness has increased a little each year, effecting my balance so severely that I have to use a walker. Any advice would be greatly appreciated. Thank You, Bob D
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burgundyNarwhal
Multiple Myeloma Discussion • September 18, 2024
MRD- & Bispecifics: Maintenance Schedule?
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Has anyone been treated with a bispecific for myeloma , reached MRD- and then had a discussion with their doctor about bi-weekly vs monthly maintenance?
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amjadali
Multiple Myeloma Discussion • September 17, 2024
Sauna Use: Any Doctor Feedback?
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Sauna use. My wife and I used to enjoy our home traditional sauna and have been using it for years. My wife was recently diagnosed with multiple myeloma and is going through induction treatment. I am hoping she could enjoy it again after the Myeloma is in remission. When we asked my wife’s Myeloma specialist if it was ok for her to use it he did not give us a clear answer. I am looking for feedback from other Myeloma patients and what did their doctors tell them? Thanks
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Iliana • Admin
Multiple Myeloma Discussion • September 17, 2024
Contribute to Personalized Myeloma Research
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Personalizing Treatment Strategies Based on Multiple Myeloma Patient Genetics at Diagnosis: The objective of this study is to assess bone marrow biopsy slides obtained during your initial diagnosis of multiple myeloma and then define biological subtypes (DNA, RNA, protein, and other types of assays for tumor and none-tumor), predict prognosis, and potentially guide treatment decisions in the future, and anticipate the clinical outcomes associated with various myeloma treatment options and treatment combinations available to patients with multiple myeloma. This study is open to all myeloma patients regardless of where they are being treated. Patients only need to sign a consent form and connect their medical records, which takes less than 5 minutes. To learn more, click here: https://healthtree.org/myeloma/curehub/private/research/tvtF4ehxp6Kj233pQMFE