Does. Anyone know if the sugar is so bad for cancer ??

Hi, I have been smouldering for the past two years. My Doctor is sending me for a second opinion on whether or not I should get a stem cell transplant. I will be 74 next month and apparently it cannot be done once I reach 75. My most recent BMB showed that I am 15 to 20% kappa restricted plasma cells with aberrant CD56 expression. The findings are consistent with persistent Plasma Cell Myeloma. My question is can a stem cell transplant stop the progression of myeloma?

Hope everyone is having a great weekend so far! I have a question regarding Revlimid, I will be starting revlimid for maintenance, I’ve read there are many possible side effects from this medication, risk of blood clots being one of them, those that are on Revlimid, are you all taking a blood thinner with it? Thank you!

I am +120 day post SCT, I have not start maintenance yet at the moment, so no MM med, just take acyclovir and some supplements. My recent labs are in normal range except platelet is a bit low. I have palpitations almost all day that worry me. I am wonder if anyone has this problem, what can it related to and what can help with. I will see my oncologist on Monday. TIA! Mai

alot of back pain - my husband has been on pomalyst,dara, dex for a year now and he has back pain , can be really bad about 2 days before he takes his dex.....not sure if there's anything you can really do for it or not - he has taken tramadol sometimes to help but can be dipiladating for him - had a nerve block once but it did nothing....any thoughts....

ZOMETA. I was diagnosed with HR MM (del of 17p & tp53) in July of 2024. I have bone lesions in my hip, ribs and spine. Most of the lesions are small and 6mm or less. The one in my hip is about the size of a quarter. I have started taking Zometa to help build my bones back. I am curious if anyone has a time frame of how long it normal takes to start seeing bone growth? I am also on Dex and have read that this can cause bone loss. Any help advice would be appreciated.

My husband was diagnosed with Smouldering MM after our new doctor ordered a blood test not previously done by past healthcare providers. He has 3 month bloodwork checks and we are curious about a few things. We are told that if his bloodwork stays clear enough for a period of time he can go to 6 month checks. However he may have had this for a long time already. I guess the biggest curiosity is how to best track the results and which numbers are the most critical to understand. We get results before the actual doctor appointment and just want to get a handle on it so we know what to ask. Honestly we felt pretty stupid at our first 3 month check.

Hoping someone might be able to help here! I was diagnosed with MM fall of 2021. IGG Kappa. Did induction therapy with ASCT March of 2022 and thankfully went into remission. Since then my Pet Scans have been negative, bone marrow path neg, no M spike, labs are all good MRD testing at facility is neg however the newer Clonoseq test does detect some cells. The # was 4 initially and on recent test was 52. I was put on revlimid after transplant, but could only tolerate 5 mg due to itchy rash and GI intolerance. I was taking it with Zyrtec everyday to alleviate symptoms. Unfortunately, after a little over 1 year taking it I had worsening GI symptoms. Initially I thought I was getting food poisoning, spending nights on the bathroom floor 1-2 times a month unable to get up (other than to toilet)for fear of passing out and having to run to bathrooms unexpectedly middle of the day. This went on for about 6-8 months when I had a thorough evaluation by GI doctor and they found no physical reason for my symptoms. At that point (April 24) revlimid was stopped. Then pomalyst was tried. Of course I broke out in hives and flat red rash with racing heart rate and headache, so that was stopped. My dr than advised that I go on monthly injections of darzalex faspro. Had this treatment one week ago. On arrival home I began coughing, wheezing and having trouble breathing. Went back to the doc, had albuterol treatment and it resolved. Since then I have been running low grade temps 99-100.7 and just generally feeling lousy. Many people in my support group went through ASCT years ago (before the clonoseq test). They went into remission and did not take any meds until their numbers went up. Going 7, 9 and even 20 years and counting without further treatment. I am seriously questioning whether I need to be receiving treatment right now one doc said that I could wait. The other doc pushes treating. Anybody with any thoughts on this? Sorry this is so long. I am 63 years old and otherwise in very good health. Physically active. Never took anything but vitamins. Thank you!

I was diagnosed with Smoldering Myeloma 4 years ago. The “smolder” gets hotter and cooler at every tri- monthly blood test, but does not reach the status of requiring treatment.Feel kinda anemically weak often, but this may be psychological. Good nutrition and light physical exercise seems to maintain my general well being, I did undergo radiation, halting prostate cancer prior to the smoldering myeloma diagnosis. Does anyone think, there is something to do, other than Watch the slow smolder for another 5-10 years? I am now 88 years old!

I was diagnosed with MM (11:14) in June 2022. I went through VRD induction therapy for 5 mos. then had a stem cell collection. I am opting out of transplant as long as possible. I went on monthly maintenance therapy of Revlimid and Daratumumab in April 2023. My labs are consistently very good except the M spike has been going up slowly since August 2023. I recently heard about some MM patients using Ivermectin with good results. Is anyone familiar with this. Thank you for you response.

Is there anyone younger here? If so, what treatment did you get? I was diagnosed at age 28 and am having trouble with survivorship.