Has anyone else developed a secondary disease called myelodisplastic syndrome as a result of treatment for multiple myeloma? I am currently being tested for this after my most recent bmb revealed a new 20q deletion on my cytogenetic test.

Friendly reminder for the Amyloidosis Support Group in-person meeting coming tomorrow: Philadelphia- Amyloidosis Support Group Meeting - Saturday, April 26th, 2025 https://lp.constantcontactpages.com/ev/reg/2cwnpee Portland, Oregon- Amyloidosis Support Group Meeting Saturday, April 26th, 2025 https://lp.constantcontactpages.com/ev/reg/bhvsbvx More Info at https://www.amyloidosissupport.org/ https://www.amyloidosissupport.org/webinars.html

My numbers increased a lot after initial six months initial drd treatment does this mean I have functional high risk mm?

I have been battling Multiple Myeloma for seven years. I have had two SCT. I have been on just about every medication and am now on Tclistamab which is different than a T-cell transplant. I have been on it for a year and I have been in remission since I started taking it.

I'd like to heat from you. If you've received financial support from a non-profit or pharmaceutical company, please let me know. And how-much! This matrix is helpful to us in-house and helps us to determine our level of support to you and keeps this program going.

What support groups are available for the caregivers?? Thank you, -Lindsay

Hi Everyone, Have any of you been asked to complete a PRO survey during your treatment? As you know, PRO stands for Patient-Reported-Outcomes. These surveys are intended to help the research and healthcare communities understand the impact of medical treatments on patients in terms of side effects and disease symptoms. Personally, I have completed such surveys and have found them to be somewhat frustrating, primarily because they tend to be too black or white and lose the richness of nuance and personal experience that are better expressed in my own words. If someone has experience of PROs, whether positive or negative, I would welcome the sharing of your experience. Did the survey capture the reality of your myeloma experience? Were you satisfied that your answers were providing helpful information about your experience to the research or healthcare team? Did you invest time and effort in your responses or did you simply respond to satisfy the team's request? Finally, do you feel that the survey captured the range, intensity, and duration of the side effects you experienced? Thank you in advance for sharing. And good luck on your myeloma journey

Is anyone who is NOT diabetic taking any GLP-1 receptor agonists (GLP-1s) anti-obesity medications like Dulaglutide (Trulicity), Exenatide (Byetta, Bydureon), Liraglutide (Victoza, Saxenda), Lixisenatide (Adlyxin), Semaglutide (Ozempic, Wegovy, Rybelsus), and Tirzepatide (Mounjaro, Zepbound) to reduce obesity and thus, reduce risk of multiple myeloma progession? Or, do you know of any Trials looking at GLP-1's and MGUS, SMM or MM?

A few spots are still open for the HealthTree Challenge: Hike & Wellness — a weekend that brings together movement, wellness, and support for blood cancer patients. Here’s what it’s about: Raise $1,500 for research, education, and patient support. Train with an optional 12-week plan to get ready for the hike. Join a team of people who care and want to make a difference. 📍 Where: Berkshires, MA 📅 When: October 23–25, 2025 Will you take on the challenge? Let’s do this! https://give.healthtree.org/event/healthtree-challenge-hike-and-wellness/e663485?c_src=socialmedia

A few spots are still open for the HealthTree Challenge: Hike & Wellness — a weekend that brings together movement, wellness, and support for blood cancer patients. Here’s what it’s about: Raise $1,500 for research, education, and patient support. Train with an optional 12-week plan to get ready for the hike. Join a team of people who care and want to make a difference. 📍 Where: Berkshires, MA 📅 When: October 23–25, 2025 Will you take on the challenge? Let’s do this! https://give.healthtree.org/event/healthtree-challenge-hike-and-wellness/e663485?c_src=socialmedia

A few spots are still open for the HealthTree Challenge: Hike & Wellness — a weekend that brings together movement, wellness, and support for blood cancer patients. Here’s what it’s about: Raise $1,500 for research, education, and patient support. Train with an optional 12-week plan to get ready for the hike. Join a team of people who care and want to make a difference. 📍 Where: Berkshires, MA 📅 When: October 23–25, 2025 Will you take on the challenge? Let’s do this! https://give.healthtree.org/event/healthtree-challenge-hike-and-wellness/e663485?c_src=socialmedia