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Shieldmaiden
Multiple Myeloma Discussion • June 10, 2025
Sharing My Life in Treatment-Free Remission
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Remission! What a glorious word. Living beyond remission requires the mental fortitude to leave your cancer behind and forge ahead and live life. Being on zero treatment puts me in a fabulous mood daily. No nagging side effects , no infusions, no pills to remember and just a feeling of normalcy. I eat sensibly and do yoga and swim and exercise my brain by reading novels and playing guitar. I pray nightly that I remain MRD- and I am thankful for my family and all my blessings . I still must go for labs and keep track of all markers;however, I must admit , stepping foot into the oncologists office reminds of what I have been through and where I am today. I feel empowered and thank my body for getting me to the point I am at today , as I glance at all the patents around me wishing the same results for them
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Bratliffe
Multiple Myeloma Discussion • June 10, 2025
SCT or CAR-T for First-Line Treatment?
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I was diagnosed with MM April 1 and am headed toward a stem cell transplant. It seems to me the Car T is a better route. Is it true that the SCT is the first line of defense or is the doctor's choice?
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MHolden
Chronic Lymphocytic Leukemia Discussion • June 10, 2025
Navigating Greetings Without Handshakes?
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Hey Everyone! I'm looking for advice on meeting new people without shaking too many hands and still being warm and welcoming. I'm a 41 year old with High risk CLL and just started Calquence (acalabrutinib) and I receive monthly IVIg treatments because my immune system was really struggling. This week my family (husband and almost 10 year old) head out on a family retreat we do annually with several other families from around the state. Many events will be outside. My concern is that I'll be meeting or re-meeting several people, which of course involves hand shaking. Has anyone figured out a way to politely meet people without shaking hands? I'm trying to keep things as normal as possible. Thanks! Mollie
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XimenaG • Admin
Multiple Myeloma Discussion • June 10, 2025
Celebrate Survivor Month: Share Your Story
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🎗️ 💜June is Cancer Survivor Month, and we want to honor and celebrate the strength, resilience, and courage of survivors like YOU! 💜 We invite you to share your inspiring story with our community and remind others that survivorship is about living. How to participate: Send us a photo of yourself or a symbolic visual of hope and share your journey in a short caption. For example: Meet [First Name], a [cancer type] survivor. Diagnosed in [year], faced [brief challenge] but never stopped [something inspiring you continue to do]. If you would like to participate, please email support@healthtree.org. Remember, by sharing, you can change a life. 💜
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XimenaG • Admin
Acute Myeloid Leukemia Discussion • June 10, 2025
Celebrating Survivors: Share Your Story
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🎗️ 💜June is Cancer Survivor Month, and we want to honor and celebrate the strength, resilience, and courage of survivors like YOU! 💜 We invite you to share your inspiring story with our community and remind others that survivorship is about living. How to participate: Send us a photo of yourself or a symbolic visual of hope and share your journey in a short caption. For example: Meet [First Name], a [cancer type] survivor. Diagnosed in [year], faced [brief challenge] but never stopped [something inspiring you continue to do]. If you would like to participate, please email support@healthtree.org. Remember, by sharing, you can change a life. 💜
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XimenaG • Admin
Chronic Lymphocytic Leukemia Discussion • June 10, 2025
Share Your Story for Survivor Month
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🎗️ 💜June is Cancer Survivor Month, and we want to honor and celebrate the strength, resilience, and courage of survivors like YOU! 💜 We invite you to share your inspiring story with our community and remind others that survivorship is about living. How to participate: Send us a photo of yourself or a symbolic visual of hope and share your journey in a short caption. For example: Meet [First Name], a [cancer type] survivor. Diagnosed in [year], faced [brief challenge] but never stopped [something inspiring you continue to do]. If you would like to participate, please email support@healthtree.org. Remember, by sharing, you can change a life. 💜
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XimenaG • Admin
Myelofibrosis Discussion • June 10, 2025
Share Your Survivor Journey With Us
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🎗️ 💜June is Cancer Survivor Month, and we want to honor and celebrate the strength, resilience, and courage of survivors like YOU! 💜 We invite you to share your inspiring story with our community and remind others that survivorship is about living. How to participate: Send us a photo of yourself or a symbolic visual of hope and share your journey in a short caption. For example: Meet [First Name], a [cancer type] survivor. Diagnosed in [year], faced [brief challenge] but never stopped [something inspiring you continue to do]. If you would like to participate, please email support@healthtree.org. Remember, by sharing, you can change a life. 💜
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XimenaG • Admin
Multiple Myeloma Discussion • June 10, 2025
Celebrate Survivor Month: Share Your Story
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🎗️ 💜June is Cancer Survivor Month, and we want to honor and celebrate the strength, resilience, and courage of survivors like YOU! 💜 We invite you to share your inspiring story with our community and remind others that survivorship is about living. How to participate: Send us a photo of yourself or a symbolic visual of hope and share your journey in a short caption. For example: Meet [First Name], a [cancer type] survivor. Diagnosed in [year], faced [brief challenge] but never stopped [something inspiring you continue to do]. If you would like to participate, please email support@healthtree.org. Remember, by sharing, you can change a life. 💜
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Sasha
Multiple Myeloma Discussion • June 10, 2025
Balancing MM Treatment and Hormone Therapy?
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My husband is on Revlimid and weekly treatment with Emplicity. Now he needs treatment for prostate cancer with radiation and hormone therapy with Lupron and Zytiga. We are really concerned regarding the side effects from the hormonal therapy. Does anyone have a similar situation of treatment for myeloma and hormonal therapy? We would appreciate any advice or shared experience.
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DIahanna • Admin
Acute Myeloid Leukemia Discussion • June 9, 2025
Financial Resource for Copay & Gas Help
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Copays .org gas financial copay/co-insurance/deductible (medications and office visits) assistance available for AML patients. Max award $4,000.00/yr. renewable yearly. 500% or less of Federal poverty levels. This is adjusted for Cost of Living Index. You must be on Medicare, Medicaid, or Military Benefits.
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DIahanna • Admin
Multiple Myeloma Discussion • June 9, 2025
Finding Financial Aid Through PAF
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Patient Advocate Foundation (PAF) has a program called Health Equity Funds that provide financial support to eligible patients living in certain counties. Go to copays.org to learn more.
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Rauchka60DAF
Myelodysplastic Syndromes Discussion • June 9, 2025
Managing High EPO Levels - Any Tips?
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My EPO IS up to 1763….. STOPPED Aranesp about 6 weeks ago, My EPO came down to 910 still extremely high. Can’t get any injections until below 500. Anyone else have this issue and what did you do to help bring down your EPO??? Mai am getting red cell transfusions.
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DianaSoto • Admin
Myelodysplastic Syndromes Discussion • June 9, 2025
Sharing Feedback on HealthTree Resources
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Hi everyone! I'm Diana, Product Designer at HealthTree. We're working to make your experience with our products and resources even better — and your feedback plays a key role in that. If you have 5 minutes, we’d greatly appreciate your input through this anonymous survey: 👉 https://forms.gle/aLChy5jwzUVQhox36 Thank you so much for your time and support!
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DianaSoto • Admin
Chronic Lymphocytic Leukemia Discussion • June 9, 2025
Share Your Feedback to Improve HealthTree Resources
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Hi everyone! I'm Diana, Product Designer at HealthTree. We're working to make your experience with our products and resources even better — and your feedback plays a key role in that. If you have 5 minutes, we’d greatly appreciate your input through this anonymous survey: 👉 https://forms.gle/aLChy5jwzUVQhox36 Thank you so much for your time and support!
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DianaSoto • Admin
Acute Myeloid Leukemia Discussion • June 9, 2025
Help Improve Our AML Resources
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Hi everyone! I'm Diana, Product Designer at HealthTree. We're working to make your experience with our products and resources even better — and your feedback plays a key role in that. If you have 5 minutes, we’d greatly appreciate your input through this anonymous survey: 👉 https://forms.gle/aLChy5jwzUVQhox36 Thank you so much for your time and support!
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DianaSoto • Admin
Multiple Myeloma Discussion • June 9, 2025
Share Your Feedback With HealthTree
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Hi everyone! I'm Diana, Product Designer at HealthTree. We're working to make your experience with our products and resources even better — and your feedback plays a key role in that. If you have 5 minutes, we’d greatly appreciate your input through this anonymous survey: 👉 https://forms.gle/aLChy5jwzUVQhox36 Thank you so much for your time and support!
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MaureenF55
Multiple Myeloma Discussion • June 9, 2025
Vaccines After SCT: Sharing Experiences?
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Can anyone comment on vaccines after SCT? I had my transplant in January and am overwhelmed with all the vaccines I’m recommend to get. I’d like to know what ones you got or didn’t get and why. And most importantly do you feel they were effective. Lastly, did you have any side effects from any of them. Thanks. Maureen
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LYP
Multiple Myeloma Discussion • June 9, 2025
Help Connecting to Financial Support?
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Thank you for the information. I have tried to access the porthole and not been successful. I’ve also called the helpline and been unable to connect. Do you have any suggestion suggestions?