Hi, In May 2021 I was told I have SMM. In Nov 2023 started on Darzalex, IVIG nothing out of the usual and outside of minor stomach distress was doing fine. In Mar 2025 my platelets dropped and even with the normal course of drugs have not improved. Currently my platelet counts are averaging around 15,000 when I receive platelet transfusions. Next week I’m scheduled for radiation on a spot on my back. Outside of being tired all the time I have no bone pain. I’m a semi-healthy 81 year old male. Seeing little mention on this forum my question is this something that other people have experienced?

Everyone need to be aware of and read the annual changes to your Medicare plan which you will be receiving soon if you haven't already received. There are many changes this year including premium, copay, deductibles and max out of pocket increases as well as changes to covered providers. Many PPO plans are being dropped as well. Make sure you have the coverage you need. I will be hosting an open Q and A on the 1st Tuesday in October right before open enrollment begins to help you navigate this season.

Hello I am 11 months post SCT After about 4 mos of 5mg daily lenalidomide (Revlimid) maintenance I developed a rash. It started as looking like a heat rash around my waist and developed into a whole body rash, looking like textured reddened skin. It itches a lot, especially if I’m hot. My docs took me off of maintenance for several weeks and gave me a prednisone pack which helped greatly. The rash returned but at a turned down level. I am now back to taking Rev every other day and using prescription lotion. It does seem a bit worse since being back on the Rev. At this point my docs are taking a wait and see approach. I know this is a common side effect. Does anyone have any insights or experiences to share. Other than this challenge things are going well for me and I am back to my normal activities Thank you !

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Well I am thinking I’m headed to a relapse. I got my bloodwork results today and my kappa is 21.4 and my ratio is in the 2 range. My ratio has been a little elevated for three months but went down in August. In July my bmb was good. less than 1%. Is there any reason besides a relapse that my numbers could be off?

Hi all. I am currently on treatment of Isa KD Isatuximab, Carfilzomib and Dex, only got 2 1/2 years of remission after SCT. I’m doing ok with the treatment every week at first now 3 weeks on and one week off. I’m on my Third round, I’ve had some vomiting the night of the treatment, so now I take a ondansetron the day of. But I’m getting night sweats and hot flushes most nights? I’m 59 years old and on HRT have been for 8 years so it’s not menopause? The night sweats started coming back, when my numbers started rising, which I think is normal, but my numbers are back to normal now, so I expected this to stop? Has anyone else had this experience? My worry is that it could be a secondary cancer? Nights sweats are a symptom of cancer.

I need help! Lots of help! I got my first cancer from 911, I worked for the federal gov. I didn't know, and also I was scared to death, by the time they found it it was a stage 4!!! Just like Farrah Faccett,and she died, I just kept suffering. Let me tell you, as my life started very hard, I was unwanted. And my nerves were a wreck! After the first cancer, than a heart attack also from 911, and Let's not for get the myltuipy myloma, which seems to come and go???? I don't believe they want to treat me because of my age,, I can't walk well enough to work my brain is mixed up, I keep going to drs. Who know less than I do, like no one care. Tomorrow, I want my mbloodmdrawn imwant to dpsee if it is getting better, worse or just staying the same. One dr. Ind, wants to put me on medicine, the dr, in Tampa say no need for treatment yet, keep,watching, but they found it in my bone morrowm2x and tell me it don't go away . So can I say I was dignised on2018 and now it's 2026,that is 8 years, how can it vibe in your bones, and than one day, it's just going to explode like it did to,my friend and my doctor,mthry had there lastm6 months in Hell. Please,I need help,with all this, what can I do I can't walk it hurts so much and I need a job .

My mom was just diagnosed yesterday with IgG Lambda Multiple Myeloma with high-risk cytogenetics (del17p – 7%, gain 1q – 6%) from a oncologist/hematologist. We want to start induction treatment ASAP, but the soonest myeloma specialist appointment is late November. The oncologist (not a specialist) has recommended quadruplet Dara-VRd as induction therapy. My questions for the group: - How critical is it to see a myeloma specialist before starting induction therapy? - Has anyone compared Dara-VRd vs Dara-KRd, especially for high-risk patients? - Are there any other induction therapy options we should consider before moving forward? I really would appreciate any help as I am freshly new to navigating all of this. Thank you all so much!

Have anyone that taken Chemo with low platelet and red blood cells tried the papaya extract leaves if so did it work to bring them back up