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TimJohnson
Multiple Myeloma Discussion • March 12, 2024
Managing Fatigue: Symptom or Stress? Tips?
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Hi there! Recently diagnosed so I don't even have all my results, risk factors, etc. yet. Sitting down with the specialist next week to design my treatment plan, so it's all very new and not a little scary. The only symptom I have is the anemia/fatigue. The rest of CRAB is normal/negative. We're also trying to sell our primary home and our rental property (in progress well before we know anything was amiss) and I just started a new job 6 days after diagnosis. So the stress needle is all the way to the right. Is there a way to differentiate the stress fatigue from the symptomatic fatigue? Other than caffeine-loading, what are some good tips, techniques, lies for mitigating the symptomatic fatigue? Thanks. Tj Scotts Valley, CA
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Sprint19
Multiple Myeloma Discussion • March 11, 2024
Masking After Transplant: When to Ease Up?
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Hi everyone. How long you waited after autologous transplant you waited to drop wearing n95 masks in small groups? My family currently wears masks anytime we encounter people outside of the home. I was very careful even before this with cleanliness and mask wearing at large events so I can be a bit extreme. Trying to get some sense of reality. Thank you.
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SueGr72
Multiple Myeloma Discussion • March 11, 2024
Experiencing Lingering Abecma Side Effects?
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Hello! I had Abecma CAR T November 2023. From looking at other people’s posts here, maybe I shouldn’t panic about these oddball issues occurring throughout the last 4 months. Examples: continuous low red blood and platelet counts, which I know are common but had to have another biopsy anyway. Also, a couple weeks ago, after the biopsy, I took a tiny mild tumble that turned into agonizing muscle pain, especially neck/head, that hasn't completely resolved yet. And now wonky kidney numbers, and low fever. It looks like I’m not the only one with these types of after-effects. The doctors don’t really give a lot of warning of various issues down the road.
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rubyCrocodile
Multiple Myeloma Discussion • March 8, 2024
Your Pre-SCT M-Spike & Light Chain Numbers?
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Question for those who underwent SCT, what was your M-Spike and light chains before the transplant? I have high risk MM and my numbers are plateauing. My Kappas is at 173 mg/L and M-protein is at 0.7 g/dL. Thank you!
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rubyCrocodile
Multiple Myeloma Discussion • March 8, 2024
Sharing Pre-SCT Lab Values?
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Question for those who underwent SCT, what was your M-Spike and light chains before the transplant? I have high risk MM and my numbers are plateauing. My Kappas is at 173 mg/L and M-protein is at 0.7 g/dL. Thank you!