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AmyBeth
Multiple Myeloma Discussion • August 6, 2024
M-Spike Disappeared, But Labs Confusing?
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Good evening! In May of this year I was diagnosed with MGUS (with a low Mspike .37) and bone marrow biopsy results being small population of lambda-restricted plasma cells. My hematologist/oncologist said we would repeat blood work again in November. I just had blood work completed because I had to change hematologist/oncologist due to insurance. My results: no monoclonal protein; Beta 2 Globulin % High; Kappa Free Light Chain High; WBC low; RBC low; MCV high; Neutrophils low; Monocytes high; Neutrophil absolute low. All other labs were normal. Can anyone give me insight? Has anyone ever had a positive Mspike and then it be negative even withouth treatment? Any insight would be helpful! Thanks in advance.
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Kerry
Multiple Myeloma Discussion • August 6, 2024
Thoughts on Postponing SCT for Another Baby?
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Hi im 44 and have finished my induction DVrd 4 rounds. I have 2 kids under 3 and we want another. Life’s good at the moment I have never had any symptoms and I’m MRD -ve. Am I being foolish by postponing my stem cell transplant?
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Hephzibah
Multiple Myeloma Discussion • August 6, 2024
Considering Next Steps After CAR T Relapse
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Hello, everyone, I'm stopping in to share my story in hope it might help someone to keep going. My CAR T Cell therapy, CARVYKTI, was in March 2023 and this coming month of September 2024 will be 18 months since I've been chemo free. I have had to receive IVIG immunotherapy every month since but that beats receiving chemo anyday. My note today is to share that I must resume treatment in September. It's back. 8 years fighting back. I am thankful for going on 18 months chemo free and am now researching to decide what treatment I should go on next. There are options, and for this I am also grateful. If possible, please share with me what treatment plan you're on or thinking about if the myeloma relapsed after CAR T cell therapy. It will help me in my decision making. Thank you, all, for listening, and for your help. Truly. Miriam
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carolartl@verizon.net
Multiple Myeloma Discussion • August 6, 2024
Managing Chronic Diarrhea Post-Chemo?
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I HAVE HAD CHRONIC DIARRHEA SINCE CHEMO IN 2017. I CAN FIND NO CURE RECOMMENDED AFTER NUMEROUS CONSULTATIONS AND OUTREACH. ANYBODY ELSE HAVE THIS OR AM I UNIQUE. ART
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kennycapps
Multiple Myeloma Discussion • August 1, 2024
Support Group Today: Discussing CureHub
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Hey, friends! In less than 2 hours (noon, Eastern) Cancer Active Support Group. (register below) This month we're talking about our experience at the HealthTree Coach summit in July. Let's talk about CureHub, why you should participate, and why all cancers should replicate this model of inclusivity and general wellness. If you haven't registered, register. Meet me there. https://throwing-bones.org/cancer-active-support-group/ Kenny