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Hephzibah
Multiple Myeloma Discussion • August 6, 2024
Considering Next Steps After CAR T Relapse
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Hello, everyone, I'm stopping in to share my story in hope it might help someone to keep going. My CAR T Cell therapy, CARVYKTI, was in March 2023 and this coming month of September 2024 will be 18 months since I've been chemo free. I have had to receive IVIG immunotherapy every month since but that beats receiving chemo anyday. My note today is to share that I must resume treatment in September. It's back. 8 years fighting back. I am thankful for going on 18 months chemo free and am now researching to decide what treatment I should go on next. There are options, and for this I am also grateful. If possible, please share with me what treatment plan you're on or thinking about if the myeloma relapsed after CAR T cell therapy. It will help me in my decision making. Thank you, all, for listening, and for your help. Truly. Miriam
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