The collateral damage of multiple myeloma for me has been extensive compression fractures in most of my thoracic spine. The fractures have healed but the aching pain with any activity that has a gravitational pull (like walking, standing) remains and is quite limiting. I have tried many forms of PT, stretching, Pilates, acupuncture as well as a RFA nerve ablation. Nothing has provided the relief I hoped for. Wondering if anyone has had similar issues and found something that helped.

Extramedullary Disease (EMD) I have been recently diagnosed with MM with extramedullary disease as my high risk factor. I would be interested to hear from others here on when they were diagnosed, what treatments they received and how they are doing. I have seen the recent positive developments with some bispecifics having good response rates with people with EMD which is encouraging.

1 q gain. Looking for feedback from patients who have 1 Q gain. How are they doing with treatment. Did they have a transplant? And how long did that work? Any unique problems due to 1 Q gain.? Thanks.

What is your experience with Tecvayli and/or Elranatamab Injection? I understand multiple infections, on antibiotics, maybe emergency room visits. Also what is your experience with Talvey. I understand that you lose your sense of taste, lose weight, nails fall off and skin peels. And Myeloma comes back when treatment stops. Curious about these treatment options.

I am new to this group. I was diagnosed with Essential Thrombocytosis about 10 years ago and I am looking for treatment options other than Hydroxeria.

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Would you like to learn more about your medication and cancer side effects and hear what other patients recommend? Explore the Side Effects Solutions Tool, see what other patients are saying, and share your own solutions. https://buff.ly/4dHeWfr

copay.org has opened for grants for Medicare patients Please everyone, don't let this enrollment period go by without reviewing your Medicare Advantage plan and Part D. You need to make sure the coverage you have will continue to cover your drugs as they may change for the upcoming year. Don't get stuck with a plan that may not cover your expensive oncology drugs.

Hello, I am a high risk “”q1 and T53 “” MM, had the SCT and now I am VGPR , can patient with high risk tell me how they have been in remission and how many relapse they had

Supposed to have my dara infusion (for maintenance) on Monday. I have a cold. Have to wait until Monday morning to see if I can go or not. I don’t want to screw up my schedule but I’m also concerned that my labs will be off if I have a cold. Thoughts ?

Hello, I'm trying to figure out if I have a neurological issue or If it's normal after 3 1/2 years of treatment to have this type of side effect . Has anyone else experienced consistent confusion feeling like you were drunk, confused and dizzy at certain times of day ? For me, it's a routine side effect 3- 5 times a week for the past several months. It seems like since the having Pomalyst . However, I feel that it's also when the dexamethasone wh with certain chemo, combined for example velcade and kyprolis, and empliciti. I've had brain MRI And it turned out normal.