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Telmo
Multiple Myeloma Discussion • July 15, 2025
Managing Severe Diarrhea: Any Natural Tips?
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Hi, a relative of mine, 86 years old, was recently diagnosed with multiple myeloma. She is being treated with immunotherapy but she is suffering from severe diarhea as a side effect of the treatment. Can someone tell me if they had the same side effect and how to best handle this? I do not think she can take any more drugs, I think something more natural would be the ideal. Thank you.
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Susan58
Multiple Myeloma Discussion • July 15, 2025
Sharing My Journey: Newly Diagnosed & First Cycle
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Hi. Just joined in. 66 years old. June 2024, numbers started looking high after blood testing. Then my gallbladder got infected and removed. Complications with bleed, added stent and recovered into the year. January 2025 more blood work with concerning rising numbers. Made oncologist visit, had blood marrow biopsy and PET scan. Biopsy showed 70% cancerous cells, 40% platelets. PET showed no bone issues, blessed. I'm IGG, light chain. No symptoms or pain. Just finished 1 cycle of 4 quad treatment, with very mild side effects. Today just 1 stomach med injections, broke out in small rash on abdomen, not itchy. Little concerned. I have a week off of 4 quads and then start cycle 2 on July 21. Have a great team at NHO in Nebraska and will head to NE Med for ASCT in fall if all goes well. So glad to find a site that I can compare to, all so new to me, as you can all imagine. My family is amazing, so I feel very positive and blessed to warrior thru this. Thanks. Sue
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Promising Results for Menin Inhibitors in Combination with 7+3 in AML | Amer Zeidan, MD | #EHA2025

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Thumbnail for Promising Results for Menin Inhibitors in Combination with 7+3 in AML | Amer Zeidan, MD | #EHA2025
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Promising Results for Menin Inhibitors in Combination with 7+3 in AML | Amer Zeidan, MD | #EHA2025

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Mmm41214
Multiple Myeloma Discussion • July 13, 2025
Deciding on Timing: SCT vs. Hip Surgery
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I'm 48 years old & was diagnosed in January w/ Lambda light chain myeloma. I also have +1q chromosomal abnormality. I'm currently on the Quad treatment therapy & waiting for my next bone marrow biopsy to be scheduled to find out my progress. I'm struggling with do I have the stem cell transplant now? Or should I wait until it comes back (if I'm found to be in remission of course). It's such a hard decision. I also need a hip replacement. If I don't need the sct right away I think surgery for my hip would be next. Infection is such a huge worry now though due to MM. I would love any and all thoughts!
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TimJohnson
Multiple Myeloma Discussion • July 12, 2025
Sharing a Great Resource for Men: Reel Recovery
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I recently returned from a retreat for men with cancer put on by Reel Recovery. It's a two day activity of fly fishing at top-flight facilities, relaxation, and camaraderie. Fly fishing skills or experience not required and they provide the gear if you don't have any. They also have a 1-1 ratio of fishing buddies to attendees (many of the buddies have also dealt with cancer themselves or with family members). There are sessions scheduled all around the US, UK, and Australia. I cannot recommend it enough for any men here or that you know who've joined the Big C Club. I put my name in to be a volunteer fishing buddy for other attendees. This has been going on for over a decade and ours was the first time that they had more than one MM patient (there were three of us) at an event. We had plenty of time on the water, good food, great roundtable discussions with a licensed counselor, and great scotch and bench fishing in the evenings. Here's the link. Please spread the word. www.reelrecovery.org
Reel Recovery | Cancer Support for Men | Group Fly-fishing/Travel | US

Reel Recovery | Cancer Support for Men | Group Fly-fishing/Travel | US

Reel Recovery offers free Fly-Fishing Retreats for men living with all forms of cancer. Helping men cope with impacts of cancer through the healing powers of the sport of fly-fishing & supportive group environment.

https://www.reelrecovery.org
Thumbnail for A Gentler Approach for Treatment of Younger Patients With AML? | Amir Fathi, MD | EHA 2025 #AML
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A Gentler Approach for Treatment of Younger Patients With AML? | Amir Fathi, MD | EHA 2025 #AML

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TrishF
Multiple Myeloma Discussion • July 12, 2025
Managing Hyperpigmentation on Maintenance?
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Hi everyone! I am now in the maintenance stage of my myeloma journey. The maintenance includes Velcade (bortezomib) injection every two weeks + revlamid daily. I’ve been noticing hyperpigmentation on my palms and face. My complexion has literally changed on my face. wondering if anyone else has experienced significant hyperpigmentation and how you treated it.