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How Does Having MDS Change My Daily Life?
Posted: Apr 09, 2024
How Does Having MDS Change My Daily Life? image

Myelodysplastic syndromes (MDS) are a group of blood disorders that affect how bone marrow makes blood cells. They can lead to low blood cell counts (cytopenia) and the inability of bone marrow cells to develop properly (dysplasia). 


Receiving an MDS diagnosis can be overwhelming as it can affect your life depending on the symptoms you are experiencing and your lifestyle. 

Common MDS symptoms occur because the production of healthy blood cells in the bone marrow is not working properly.
This leads to the reduction of the three types of blood cells: 

  • Red blood cells: Low counts can cause a person to feel fatigued easily, feel cold, and have paler lips or cheeks. 
  • White blood cells: When levels are too low (leukopenia), the body is prone to infections, or a person can have fever and chills. 
  • Platelets: Low counts (thrombocytopenia) can be seen as easy bruising or bleeding in gums, urine, or stool.

Many of these symptoms impact lifestyle. For example, if you’re susceptible to bleeding, you can’t do certain outdoor activities like parachuting, rock climbing, or other activities that put you at a higher risk of injury. If you become injured and start bleeding, healing will be more complicated.  

It’s common for patients to experience fatigue, impacting their daily life since they get easily tired.

We had the privilege of featuring insights from MDS experts, Dr. Matsui and Dr. Feld, who mentioned that studies show that educated and empowered patients often have better outcomes. 

HealthTree University is the first and only free comprehensive curriculum for patients and caregivers; if you want to keep reading and learn more about MDS, create a free account to gain exclusive access where you can watch our newest unreleased videos, easily explore topics through our organized courses. Visit HealthTree University and become an empowered patient today! 

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The author Jimena Vicencio

about the author
Jimena Vicencio

Jimena is an International Medical Graduate who is part of the HealthTree Patient Experience team. She loves learning new things led by her curiosity, playing with her pets, and exercising in her free time.

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