While participating in clinical trials is an excellent way to be part of research in myelodysplastic syndrome (MDS), it's not possible for every patient to do so.
People living with MDS might live far away from an academic center, not fit typical qualifications for clinical trials, not have access to adequate transportation, or work a full-time job. They might have children or grandchildren to take care of at home or simply not be interested in a clinical trial at this time in their lives. These are just some of the barriers experienced by patients when considering a clinical trial.
However, just because you can't participate in a clinical trial doesn't mean participating in MDS research is unattainable.
By connecting your medical records to HealthTree Cure Hub, you are joining over 14,000 blood cancer patients who have generously donated their anonymized data to be reviewed by researchers. More numbers in data portals such as this mean more accurate data for those investigators who are performing blood cancer research.
Learn how to connect your records easily and quickly in the video below:
Here are other ways that you can participate in research as or on behalf of an MDS patient by completing one of the following:
Share this article with those in your MDS circle! The more people who know about and participate in real-world data research, the closer we are to better outcomes for all MDS patients!
While participating in clinical trials is an excellent way to be part of research in myelodysplastic syndrome (MDS), it's not possible for every patient to do so.
People living with MDS might live far away from an academic center, not fit typical qualifications for clinical trials, not have access to adequate transportation, or work a full-time job. They might have children or grandchildren to take care of at home or simply not be interested in a clinical trial at this time in their lives. These are just some of the barriers experienced by patients when considering a clinical trial.
However, just because you can't participate in a clinical trial doesn't mean participating in MDS research is unattainable.
By connecting your medical records to HealthTree Cure Hub, you are joining over 14,000 blood cancer patients who have generously donated their anonymized data to be reviewed by researchers. More numbers in data portals such as this mean more accurate data for those investigators who are performing blood cancer research.
Learn how to connect your records easily and quickly in the video below:
Here are other ways that you can participate in research as or on behalf of an MDS patient by completing one of the following:
Share this article with those in your MDS circle! The more people who know about and participate in real-world data research, the closer we are to better outcomes for all MDS patients!
about the author
Audrey Burton-Bethke
Audrey joined the HealthTree Foundation as a Community Manager in 2020 after previously working in the nonprofit field for 4 years as a director of Fundraising and Development. She graduated from BYU with a major in Spanish and Nonprofit Management. Audrey is passionate about serving others, loves learning, and enjoys a nice mug of hot chocolate no matter the weather.
Subscribe to the weekly newsletter for news, stories, clinical trial updates, and helpful resources and events with cancer experts.