Can't Join a Clinical Trial? Contribute to MDS Research with Real-World Data

While participating in clinical trials is an excellent way to be part of research in myelodysplastic syndrome (MDS), it's not possible for every patient to do so.

People living with MDS might live far away from an academic center, not fit typical qualifications for clinical trials, not have access to adequate transportation, or work a full-time job. They might have children or grandchildren to take care of at home or simply not be interested in a clinical trial at this time in their lives. These are just some of the barriers experienced by patients when considering a clinical trial. 

However, just because you can't participate in a clinical trial doesn't mean participating in MDS research is unattainable. 

By connecting your medical records to HealthTree Cure Hub, you are joining over 14,000 blood cancer patients who have generously donated their anonymized data to be reviewed by researchers. More numbers in data portals such as this mean more accurate data for those investigators who are performing blood cancer research. 

Learn how to connect your records easily and quickly in the video below: 

Here are other ways that you can participate in research as or on behalf of an MDS patient by completing one of the following: 

1. Connect your medical records to our database in HealthTree Cure Hub today. It's quick and easy, and you can share your records with confidence that your personal information will be kept private. All information shared with researchers is anonymized. We value your privacy and your security. 
2. Stay tuned to our News Website. We will publish articles regularly with action steps on how to participate and allow others to do the same. 
3. Participate in surveys and studies within HealthTree Cure Hub. This can take 3-5 minutes of your time and influence the way healthcare providers treat myeloma patients. Join HealthTree Cure Hub and start participating today.

Share this article with those in your MDS circle! The more people who know about and participate in real-world data research, the closer we are to better outcomes for all MDS patients!