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SoCal Myeloma Community Chapter: Thanks, Giving and Receiving: Opportunities and Resources for Multiple Myeloma Patients

Name: SoCal Myeloma Community Chapter: Thanks, Giving and Receiving: Opportunities and Resources for Multiple Myeloma Patients
Start: 2021-11-09T18:25:00-08:00
End: 2021-11-09T20:00:00-08:00

Nov 09, 2021

06:25PM - 08:00PM PST

Online Event

Overview

The Southern California Myeloma Community Chapter welcomes Rebekah Tobin, RN, BSN, Patient Advocacy Liaison for Multiple Myeloma with Takeda Oncology. She will share a comprehensive review of support programs, services, and resources from multiple organizations related to treatment and financial/legal services. This will be an engaging, interactive conversation that includes real-world experiences. Considering the breadth of support available, we expect that everyone will learn something new! You don’t want to miss this session.

A portion of this meeting will not be recorded, please make sure to attend in person if possible.

Agenda

06:25 PM

SoCal Community Chapter Members

06:30 PM

Welcome and Introductions

Audrey Burton-Bethke

06:40 PM

An Interactive Conversation of Multiple Myeloma Resources and Real-World Experiences

Rebekah Tobin, RN, BSN, and SoCal Community Chapter Members

07:40 PM

Myeloma Crowd Research Initiative

Todd Kennedy

07:45 PM

Community Events Calendars

Diane Kennedy

07:50 PM

Virtual Mingle/Member Open Forum

SoCal Community Chapter Members

Speakers & Moderators

Todd Kennedy

Todd Kennedy was diagnosed with myeloma in 2017 and has become a tireless advocate for myeloma patients and research. His background includes over 30 years working in the pharmaceutical industry until he and his wife Diane retired from their respective first careers to devote their time and talents to strengthen the myeloma community. They collaborate with HealthTree and other trusted partners to educate and empower myeloma patients and caregivers and accelerate the arrival of cures.

Diane Kennedy

Diane has been an active and engaged care partner with Todd, her husband, since he was diagnosed with multiple myeloma in 2017. In January 2020 they retired to devote their time and talents as patient advocates, HealthTree coaches, and myeloma community leaders. They are committed to helping improve and advance cancer care for all patients and feel a collaborative, virtual support group is an excellent way to help educate and empower patients and their families. Diane and Todd have lived in Orange County, CA for over 25 years where they raised their two sons.

Audrey Burton-Bethke

Audrey joined the HealthTree Foundation as the Myeloma Community Program Director in 2020. While not knowing much about myeloma at the start, she has since worked hard to educate herself, empathize and learn from others' experiences. She loves this job. Audrey is passionate about serving others, loves learning, and enjoys a nice mug of hot chocolate no matter the weather.

Rebekah Tobin, RN, BSN

Rebekah is an Oncology Registered Nurse and has more than 10 years of experience in cancer care. She specializes in working to enhance patients’ overall well-being, this work included helping educate patients about what to expect during treatment and managing infusion care, symptoms, and side effects. In recent years, Rebekah has focused on medical education about the evolving management of certain cancers, and on serving as a resource for other healthcare professionals. She is dedicated to educating patients and their loved ones so they can become their own best advocates. care coordination, and care of patients following heart, lung, and blood vessel surgery. Rebekah is driven by her curiosity and a yearning to better understand the needs of the patient community.