My brother is an inpatient right now getting treated for relapse MM MDS and malnutrition since he started and stopped Teclistamab with IVIG therapy he started unexpained weight loss in last year to date 60 lbs and lung infections that never healed I was hoping once in hospital we’d have some idea what’s happening to him His WBC was critically high 45.7 and not decreasing much even though in hospital getting strong antibiotics He just call d saying they came in and said he has luekemia and will be treated but as outpatient but at least it’s not acute We are so confused It’s all abbreviations and we don’t know what’s worse or better at this point MM MDS AMO CMML Anyone have any advice with this??? IDK how you can have MM and MDS and straight to luekemia so fast and then get discharged???

Has anyone experienced diarrhea after CarT and while on prophylactics with Bactrim and acyclovir and BP meds? If so how was it resolved?

Help us advance CLL/SLL research! 🔬 We want to hear from you. We’ve launched a short survey to learn about your treatment goals and daily challenges. Your input helps us bridge the gap between patient needs and clinical care. Your participation is voluntary, and your data remains anonymous for research analysis. 🔗 Start the survey here: https://healthtree.org/cll/curehub/private/research/wxw9gioA0FAsBF3PSKeD?utm_source=&utm_medium=meta&utm_campaign=socialmedia&utm_content=general

Good morning i am a polycythemia vera patient for 15 years phlebotomy only until a year ago i tried hydroxarea and my skin started peeling and burning i am just now starting jakafi and was wondering how your doing on it

Hi everyone. Has anyone wanted to discuss CAR T as a treatment option with their doctor but were told that it wasn't right for you even though you thought you were eligible? And what did you do about it?

They are introducing Total Assist which has some great financial opportunities for some of us. Check out their website at www.uniting.patientadvocate.org for more details.