I recently finished my step up dosage of Talvey and experienced all the side effects of loss of taste, skin peeling, dry mouth, skin rash with itching. As I was getting ready for another dose in 2 weeks I came down with vertigo and gait imbalance. My doctor took me of Talvey and I am still dealing with vertigo and ataxia. Has anyone experienced this? Talvey can cause neurotoxicity to the cerebellum.

“Has anyone with PV taken givinostat and experienced rapid diffuse hair thinning or hair loss? If so, what happened when the drug was continued or stopped?