I was diagnosed with IGA Kappa January 2023. I had my ASCT in October 2023 & have relapsed 6 months later. I have high risk features. I started maintenance therapy Feb 2024- Darzalex & Revlimid but my IGA fell in above normal range last week and Monoclonal protein showed up as well. I will be starting 2 x week Kyprolis & Pomalyst (daily) for 3 weeks on/ 1 week off. If anyone would share their experience with this regimen it is most appreciated 🙏

is there any cure for MM related bone lesions?

I am looking for anyone who has participated in allo CAR-T to potentially speak with one of my coachees.

Anyone here taking Xopovio orxenclexta? how's it working?

Hello! I’m currently smoldering since December 2022. My initial fish test showed abnormal with 1q gain, four copies and 9p24(jac2) gain, 3 copies. I just had a new bmb in March, the fish results indicated everything was normal. Does anyone know if it is normal to go from abnormal to normal without having any treatments? Have anyone experienced this?

Amyloidosis Support Groups has in-person meetings in a few cities in April; I highly recommend those meetings! https://www.amyloidosissupport.org/upcoming_events.html

I am a multiple myeloma patient from Kenya in East Africa. I was diagnosed with MM on June 2022 after many years of health problems and intractable epistaxis from 2020. Due to lack of facilities in my country I decided to go for BMT in India in late 2022. I had a successful transplant on March 2023, I am back to my country and I am currently on Lenalidomide during this post-transplant management period. I have been responding well apart from very low white blood counts which are regular but I normally get Neutas immunotherapy booster from time time.

Anyone else here dealing with Stage 3 kidney disease also? Any advice? Might have to switch meds as the dara/Pom doesn't seem to be being very effective...

After my first relapse last fall, I was placed on a DKd regimen. Very effective, but the Kyprolis causes my heart rate to elevate by 50% the night of the infusion, which makes it impossible to sleep. The Dex doesn’t help either. Has anyone experienced this and found a way to lower your heart rate and overcome the insomnia?

Hello, I started relapsing after only 6 months post-SCT (which was last August (2023)). This is my second relapse since being diagnosed three years ago. At that time I was given Dara-RVD and then maintenance until I had my first relapse in March 2023. Will now be moving into CAR-T, changing up my medication as a bridge. Was wondering if there are any folks out there who relapsed early after SCT and what your journey has been like since? I have translocation 4:14, no other mutations. Am admittedly very worried about this.....thank you!

wondering if anyone here has any experience or insight with regard to kidney recovery during induction? Lambda light chain myeloma was diagnosed after my spouse's blood work showed creatinine levels 10x above normal range. He's just started his second cycle of CyBorD-D and his light chain number is way down, creatinine levels dropped by half but still very high. eGFR is improving but slowly. The nephrologist recommended a wait-and-see approach before starting dialysis. I can't get a clear sense regarding the likelihood and/or extent of kidney recovery