Your Feed

Filter by
See content from
Back to the latest
Avatar
beigeUrchin
Multiple Myeloma Discussion • April 10, 2024
Managing Painful New Fractures: Kyphoplasty?
AI-generated title
I am in remission (IgA MM) based on bone marrow results after my first 8 month round of Velcade-Darzalex-Dexamethasone-Revlamid. My biggest hurdles have been massive blood clots (saddle & all 5 lobes) in September 2023 for which an emergency thrombectomy was performed and I am now on Xarelto. I also had lumbar fractures & had 3 kyphoplasties in August 2023 which was miraculous & got rid of all of my pain. Now I am riddled with severe pain again with 3 new fractured thoracic vertebrae. It has been suggested to undergo surgery again with kyphoplasty. In looking at the rest of my spine it is riddled with lesions. Does anyone have experience in any alternate procedures that should be reviewed or information on kyphoplasty concerns? I am on Zometa IV monthly & Revlamid 10mg maintenance. I am hoping there is hope & progress for bone lesions.
Avatar
NKP64
Multiple Myeloma Discussion • April 9, 2024
Velcade Storage at Home: Any Tips?
AI-generated title
Hello all If anyone is self administering velcade rather than visiting hospitals, please could you advice the storage technique for it? I am a little worried about it as I am not sure whether they should be refrigerated or not? Also it is summer time in India, 35-40 degrees are very common. Many thanks
Avatar
NKP64
Multiple Myeloma Discussion • April 5, 2024
Understanding M Protein Drop: Good Progress?
AI-generated title
Hello everyone I am just trying to understand any timeline for monoclonal protein to reach 0 or anything that should be kept in mind to know the efficacy of the treatment plan for newly diagnosed Multiple myeloma. My father's M protein came down from 2.85- 0.7 in 2.5 cycles so far. Should I consider this to be a good progress? Many thanks