Steve Hodges

acute myeloid leukemia coach since 2023

Steve is an AML patient who has had 7+3, FLAG, multiple consolidations and additional Aza/Ven cycles pursuant to achieving complete remission through a Bone Marrow Transplant in late February 2023. My leukemia is in remission, despite an adverse prognosis, and my substantial GVHD challenges are under control. My immune system has not reconstituted but I've worked out ways to see people and limit my risk. I enjoy the little things: sunshine, What's for lunch? What's for dinner? Can I get a low-cost Bluetooth gizmo to use on Zoom calls? Can we have a cup of coffee together at an off time? I love playing piano for people at the hospital, the hospice, and online Sunday Zooms. Steve grew up working on cattle and horse farms. He’s an amateur pianist who plays regularly for Hospital, Hospice, and others. He is a retired IT professional, and an active volunteer with several health and hospital Patient/Family councils. He is an active board member for youth and adult musical organizations. Steve likes books, hiking/walking and podcasts. He's a trained end-of-life advocate who holds an MSW, a dad and very happy grandfather.

Carolyn Briles

acute myeloid leukemia coach since 2023

In November 2016 I was diagnosed with AML. I was 67 and had just retired from a job I'd had over 30 years. I did the traditional 7+3 treatment and gained remission. However, 10 months later I relapsed and was scheduled for a bone marrow transplant. I had a "reduced intensity" allogeneic transplant due to my age. My transplant was October 17, 2019. I did have a few side effects (GVHD) but was able to go home within 25 days after the transplant. I'm living a normal life with my husband, my dogs and fill in my time with travel and hobbies. I enjoy helping people who are dealing with an AML diagnosis, or those that have questions about treatment and the process of a transplant. I think with my experience I can help other AML patients get through it.

Erin Prendergast

acute myeloid leukemia coach since 2024

I was diagnosed with high risk AML at the age of 34. 12 weeks pregnant at the time, I found myself in a life threatening situation with a WBC of +180k and a very difficult decision was made alongside my husband, family, religious support, and medical staff to undergo a medically indicated termination. Losing my child compounded the difficulties associated with acute leukemia treatment. I underwent induction 7+3 achieving CR and one round of HiDAC consolidation before SCT. I was MRD positive prior to transplant. I had a full match sibling donor and peripheral blood SCT was April 26, 2023. Almost two years post transplant, I am back to work, traveling, and teaching group exercise again and my disease remains in remission. I currently suffer from chronic graft vs host disease but I am navigating a full life despite its difficulties.